ArticleJournal of medical Internet research2024
Designing and Evaluating IT Applications for Informal Caregivers: Scoping Review.
Article in Journal of medical Internet research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- Acceptability of an Intervention to Prevent Older Adult Mistreatment Among Family Caregivers to Persons With Dementia: Multimethod Pilot Study.JMIR formative research · 2025Trial
- Accounting for the Unaccounted in AI and Care: Bringing Young Carers into the AI Realm.Journal of medical Internet research · 2026Article
- Dynamics of Digital Support Platform Use Among Family Caregivers of Children With Disabilities: Longitudinal Study.JMIR mHealth and uHealth · 2026Article
- Enhancing Caregivers' Quality of Life Through a Web-Based Person-Centered Solution (TechQoL4Carers): Protocol for a Mixed Methods Pilot Trial.JMIR research protocols · 2026Article
- Quality in Use in Connected Mental Health: Protocol for a Systematic Mapping Study.JMIR research protocols · 2026Article
- Designing trustworthy, low-threshold care coordination: co-creating a hybrid CareCompass with rural informal caregivers.Frontiers in digital health · 2026Article
- Opportunities and Challenges for Designing in Connected Health: Insights From an Expert Workshop.Journal of medical Internet research · 2025Article
- An Accessible Multifunctional System to Support Safe and Independent Aging in Place: Iterative Development and Qualitative Analysis.JMIR aging · 2025Article
- Designing an AI companion to support informal caregivers in role transition: insights from a design science approach.BMC nursing · 2025Article
- Medicaid Education and Eligibility Planning for Caregivers: Website Usability and Validation Study.JMIR aging · 2025Article
- AI in Home Care-Evaluation of Large Language Models for Future Training of Informal Caregivers: Observational Comparative Case Study.Journal of medical Internet research · 2025Observational
- Learner experiences of a carer-focused massive open online course on psychosis: A qualitative study.Digital healthArticle
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInformal caregivers, often family members or friends, play a crucial role in supporting individuals with chronic illnesses, disabilities, or age-related needs. However, the demands of caregiving can be overwhelming, leading to stress, burnout, and negative impacts on caregivers' well-being. IT applications have emerged as potential solutions to support informal caregivers, but their design and evaluation often lack a comprehensive understanding of caregivers' needs and preferences. By understanding caregivers' perspectives on these issues, this review aimed to inform the development of more effective and user-centered IT solutions that truly support caregivers' needs.
objectiveThe purpose of this study was to conduct a scoping review to outline design recommendations for IT applications gathered from informal caregivers. In addition, this study presents evaluations of the use of IT applications by informal caregivers.
methodsA five-step scoping review methodology was used to map relevant literature in the following manner: (1) research question identification, (2) relevant study identification, (3) selection of pertinent studies for review, (4) data charting from the selected literature, and (5) summarization and reporting of results. A structured search was conducted across the PubMed, Scopus, IEEE Xplore Digital Library, Web of Science, and ACM Digital Library databases. In addition, reference list hand searches and keyword searches in Google Scholar were undertaken. The inclusion criteria comprised research articles (journal and conference) focusing on IT applications tailored for informal caregivers, primarily qualitative studies. Two reviewers independently identified articles for review and extracted the data. Conflicts were resolved through discussion, with a third reviewer consulted if consensus could not be attained. Thematic analysis was used to analyze the data.
resultsA total of 82 articles were selected for the scoping review-44 (54%) related to design and 39 (48%) related to evaluation of IT applications. Six overarching themes emerged related to designing IT applications: information access, support systems, streamlining care-related tasks, fostering informal caregivers' well-being, communication with formal health care professionals, and task support. Furthermore, 3 broad themes emerged related to the evaluation of IT applications for informal caregivers: facilitators of using IT applications, barriers to using IT applications, and suggestions for improving IT applications for informal caregivers.
conclusionsTo our knowledge, this is the first study to map the literature on the design and evaluation of IT applications for informal caregivers. This scoping review outlines current practices and recommendations for designing and evaluating the use of IT applications for informal caregivers. It identifies 6 key design themes and 3 evaluation themes, offering valuable insights for future development in this field. These findings provide a road map for enhancing user-centric IT solutions in informal caregiver support technologies. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): RR2-10.2196/47650.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.