Evidence map›Paper›PMID 39441475›Full record

ArticleJournal of autism and developmental disorders2026

Community Provider Perspectives on an Autism Learning Health Network: A Qualitative Study.

Josie Kearney, Catherine Bosyj, Victoria Rombos, Alicia Brewer Curran, Brenda Clark, Wendy Cornell, Shannon Mah, Melissa Mahurin, Nicholas Piroddi, Kristin Sohl and 2 more

Erratum issuedAbstract read
In one paragraph

Article in Journal of autism and developmental disorders, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

12 authors.

Josie KearneyHolland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada.ORCID http://orcid.org/0009-0004-4887-5401
Catherine BosyjHolland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada.
Victoria RombosHolland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada.
Alicia Brewer CurranECHO Autism Communities, University of Missouri School of Medicine, Columbia, MO, USA.
Brenda ClarkDepartment of Pediatrics, University of Alberta, Edmonton, AB, Canada.
Wendy CornellECHO Autism Communities, University of Missouri School of Medicine, Columbia, MO, USA.
Shannon MahGlenrose Rehabilitation Hospital, Edmonton, AB, Canada.
Melissa MahurinECHO Autism Communities, University of Missouri School of Medicine, Columbia, MO, USA.
Nicholas PiroddiDepartment of Pediatrics, University of Alberta, Edmonton, AB, Canada.
Kristin SohlECHO Autism Communities, University of Missouri School of Medicine, Columbia, MO, USA.
Lonnie ZwaigenbaumDepartment of Pediatrics, University of Alberta, Edmonton, AB, Canada.
Melanie PennerHolland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada. mpenner@hollandbloorview.ca.ORCID http://orcid.org/0000-0002-8376-9768

Funding

Autism Care Network Autism Care Network
6 · The paper itself

Abstract

Although autism is highly prevalent, no single care center has enough patients to produce generalizable knowledge of optimal care; this slows the pace of quality improvement research. The Autism Care Network (ACNet) is a learning health network (LHN) dedicated to developing the most effective approach to care for autistic children and adolescents through integrating clinical and research data. Given that most autistic patients receive care in the community, expanding ACNet to include community providers is essential to improve autism care. Our objectives were to: (1) understand the current data collection practices, learning needs, capacity, and overall interest of community clinicians in participating in an autism LHN; (2) identify their perspectives on participating in a LHN and ways in which their engagement and interest can be cultivated. Participants were purposively sampled from community physicians who participated in ASD-focused educational programming. In-depth semi-structured interviews were conducted. Analysis of 29 participant interviews yielded five primary themes: Navigating Administrative Challenges, Improving Data Collection Practices, Increasing Provider Confidence and Competence, Breaking Down Silos, and System and Societal Barriers to Achieving Best Practices. This study provides a rich and nuanced understanding of the experiences of community providers regarding the challenges of ASD care provision in the community. Overall, these findings suggest that LHNs have the potential to address several of the issues in community autism care highlighted by community providers.

Indexed as

Attitude of Health PersonnelAutistic DisorderCommunity NetworksAdolescentAdultChildFemaleHumansMaleQualitative ResearchAutismCommunityLearning health networksQuality improvement

Identifiers

PMID39441475
PMCPMC12987866

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.