Evidence map›Paper›PMID 39439748›Full record

ArticleRheumatology advances in practice2024

Support needs of gout patients and suitability of eHealth to address these needs.

Jeffrey van der Ven, Bart J F van den Bemt, Floor Ariaans, Johanna E Vriezekolk, Marcel Flendrie, Lise M Verhoef

Abstract read
In one paragraph

Article in Rheumatology advances in practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

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5 · Who and what money

Authors and funding

6 authors.

Jeffrey van der VenDepartment of Research, Sint Maartenskliniek, Nijmegen, The Netherlands.ORCID https://orcid.org/0000-0003-0897-2149
Bart J F van den BemtDepartment of Research, Sint Maartenskliniek, Nijmegen, The Netherlands.
Floor AriaansRadboud University, Nijmegen, The Netherlands.
Johanna E VriezekolkDepartment of Research, Sint Maartenskliniek, Nijmegen, The Netherlands.
Marcel FlendrieDepartment of Rheumatology, Sint Maartenskliniek, Nijmegen, The Netherlands.
Lise M VerhoefDepartment of Research, Sint Maartenskliniek, Nijmegen, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objectives: To investigate the support needs of patients with gout regarding information, communication, treatment and disease monitoring, and patients' views on and preferences for eHealth applications to address these needs. Methods: A focus group study using purposive sampling was conducted. Three focus group sessions with a duration of 2 h per group were held with in total of 23 patients using urate-lowering therapy, recruited from primary and secondary care. Audio recordings were transcribed, and data were analysed using thematic analysis. Results: Eight themes were identified. Five themes addressed support needs of gout patients and suitability of eHealth in addressing those needs: (1) Timely access to healthcare, especially during flares; (2) (personalized) information regarding diagnosis, medication, and diet; (3) insight into uric acid levels and medication side effects through blood monitoring; (4) better coordination across primary and secondary care; and (5) self-management and shared responsibility over care for maintaining health. Three themes addressed eHealth in general: (1) receptive towards eHealth in gout care; (2) the preference for eHealth to have a complementary role (i.e. not replacing face-to-face) contact with healthcare providers; and (3) preferences on eHealth use and functionalities. Conclusion: Patients expressed various needs regarding their disease management and projected a supporting role for eHealth in (self)management of gout. Addressing the needs and preferences of patients could enhance their understanding of the disease and treatment, self-management, and possibly health outcomes.

Indexed as

eHealthfocus groupsgoutneeds assessmentperspectivespreferencesqualitative researchsupport needs

Identifiers

PMID39439748
PMCPMC11494372

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