Evidence map›Paper›PMID 39433359›Full record

ArticleBMJ supportive & palliative care2026

Family caregivers of children with cystic fibrosis: supportive care needs - scoping review.

Danial Shadi, Mahnaz Jabraeili, Hadi Hassankhani, Fatemeh Alhani, Mohammad Arshadi Bostanabad

Abstract readScoping Review
In one paragraph

Article in BMJ supportive & palliative care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Danial ShadiPhD candidate of nursing, Department of Pediatric Nursing, Tabriz University of Medical Sciences, Tabriz, Iran (the Islamic Republic of).ORCID http://orcid.org/0000-0002-7036-6361
Mahnaz JabraeiliDepartment of Pediatric Nursing, Nursing and Midwifery faculty, Tabriz University of Medical Sciences, Tabriz, Iran (the Islamic Republic of).
Hadi HassankhaniDepartment of Medical Surgical Nursing, Nursing and Midwifery faculty, Tabriz University of Medical Sciences, Tabriz, Iran (the Islamic Republic of).
Fatemeh AlhaniTarbiat Modares University, Tehran, Tehran, Iran (the Islamic Republic of).
Mohammad Arshadi BostanabadDepartment of Pediatric Nursing, Nursing and Midwifery faculty, Tabriz University of Medical Sciences, Tabriz, Iran (the Islamic Republic of) arshadi9429@gmail.com.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundCystic fibrosis (CF) in children requires complex and time-consuming daily care, presenting significant challenges for families and caregivers. Family caregivers caring for children with CF report diverse and complex needs.

objectiveThis review aimed to identify the supportive care needs of family caregivers of children with CF. REVIEW

methodsThis scoping review was conducted to identify the supportive care needs of family caregivers for children with CF using the methodology proposed by Arksey and O'Malley. The Preferred Reporting Items for Systematic review and Meta-Analysis extension for Scoping Reviews checklist was used as a guide. The inclusion criteria included full-text quantitative and qualitative English articles from January 2000 to Apr 2024. DATA SOURCES: Structured searches were conducted using Magiran, MEDLINE (PubMed), Scopus, ScienceDirect, SID (Science Information Database), Web of Science and Google Scholar search engines.

findingsA search across six databases, including Magiran (96), PubMed (680), Scopus (828), ScienceDirect (972), SID (Science Information Database) (47) and Web of Science (409), identified 3032 records. An additional 1185 related articles were found through a manual search of the reference lists and the Google Scholar search engine bringing the total to 4217. Out of 4217 initial articles, 21 eligible articles were reviewed. The findings from this study indicated that family caregivers of children with CF face multidimensional needs requiring comprehensive attention and support including educational/informational, psychological/emotional, spiritual, social, family-related, health and child development and growth needs.

conclusionAddressing the needs of family caregivers of children with CF requires a multidimensional approach including multidisciplinary team support across various domains.

Indexed as

CaregiversCystic FibrosisFamilySocial SupportChildHumanschildrencystic fibrosisfamily caregivers

Identifiers

PMID39433359
PMCPMC13151439

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.