Evidence map›Paper›PMID 39432535›Full record

ArticlePLoS neglected tropical diseases2024

Uncovering intersecting stigmas experienced by people affected by podoconiosis in Nyamasheke district, Rwanda.

Jean Paul Bikorimana, Gail Davey, Josephine Mukabera, Zaman Shahaduz, Peter J Mugume, Papreen Nahar

Abstract read
In one paragraph

Article in PLoS neglected tropical diseases, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Jean Paul BikorimanaCentre for Gender Studies, College of Arts and Social Sciences, University of Rwanda, Kigali, Rwanda.ORCID 0000-0002-8433-3069
Gail DaveyCentre for Global Health Research, Global Health and Infection Department, Brighton and Sussex Medical School, University of Sussex, Brighton, United Kingdom.
Josephine MukaberaCentre for Gender Studies, College of Arts and Social Sciences, University of Rwanda, Kigali, Rwanda.
Zaman ShahaduzCentre for Global Health Research, Global Health and Infection Department, Brighton and Sussex Medical School, University of Sussex, Brighton, United Kingdom.
Peter J MugumeCentre for conflict Management, College of Arts and Social Sciences, University of Rwanda, Kigali, Rwanda.
Papreen NaharCentre for Global Health Research, Global Health and Infection Department, Brighton and Sussex Medical School, University of Sussex, Brighton, United Kingdom.

Funding

NIHR NIHR200140
6 · The paper itself

Abstract

backgroundPodoconiosis is a stigmatising neglected tropical condition, but the nature of podoconiosis stigma has not been fully explored. There is a growing understanding that the experience of stigma is intersectional, yet no research has been done on this matter in relation to podoconiosis. The aim of this paper is to contribute to the understanding of podoconiosis-related stigma by illustrating how multiple individuals' positionalities intersect to shape the experience of stigma due to podoconiosis.

methodsWe used qualitative research to explore the experience of stigma among people affected by podoconiosis. Data were gathered using participant observation, interviews, focus group discussions and participatory methods. A total of 59 participants, including patients, local leaders, community health workers, and family members, were purposively selected to participate in this study.

findingsWe identified three features in which stigma related to podoconiosis was grounded. These were bodily deformation, illness contamination and bodily weakness. The experience of stigma was shaped by the convergence of multiple individual positionalities and identities. Social positionalities and identities based on socio-economic, gender, age and illness status intersected to shape podoconiosis stigma.

conclusionOur study demonstrates that the experience of stigma due to podoconiosis is intersectional, going beyond biological features of podoconiosis. The stigma experienced by affected individuals is complex, and shaped by the convergence of social structures and many individual identities such as socio-economic status, gender, disability and age. This understanding is crucial to analysing stigma related to podoconiosis, or other NTDs, and for designing interventions that address stigma that arise from biological aspects of disease and social factors simultaneously. Such holistic interventions can significantly improve the well-being of those affected by podoconiosis.

Indexed as

ElephantiasisSocial StigmaAdultAgedFemaleFocus GroupsHumansMaleMiddle AgedQualitative ResearchRwandaYoung Adult

Identifiers

PMID39432535
PMCPMC11527326

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.