Evidence map›Paper›PMID 39427169›Full record

Observational studyBMC complementary medicine and therapies2024

Education about complementary and alternative medicine in cancer self-help groups by trained peers.

Joachim Weis, Martina Jablotschkin, Markus Horneber, Diana Steinmann, Claudia M Witt, Stefanie Helmer, Hans Helge Bartsch

Abstract readObservational Study
In one paragraph

Observational study in BMC complementary medicine and therapies, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Joachim WeisDepartment of Self-Help Research, Medical Faculty, Comprehensive Cancer Center, University Medical Center of Freiburg, Hugstetter Str. 49, 79106, Freiburg, Germany. joachim.weis@uniklinik-freiburg.de.
Martina JablotschkinInstitute for Continuing Scientific Education, Catholic University of Applied Sciences, Freiburg, Germany.
Markus HorneberDepartment of Internal Medicine, Division of Respiratory Medicine, Paracelsus Medical University, Klinikum Nuernberg, Germany.
Diana SteinmannDepartment of Radiotherapy, Hannover Medical School, Hannover, Germany.
Claudia M WittInstitute for Complementary and Integrative Medicine, University Hospital Zurich and University of Zurich, Zurich, Switzerland.
Stefanie HelmerInstitut für Gesundheits- und Pflegewissenschaft Charite Universitätsmedizin Berlin, Berlin, Germany.
Hans Helge BartschDepartment of Oncological Rehabilitation (Former Medical Director), Medical Center, University Clinic Center Freiburg, Freiburg, Germany.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeOn average, about 50% of cancer patients use complementary and alternative medicine (CAM) in addition to conventional cancer treatment. Since there is a high need for information, patients often search for information about CAM and share experiences with peers, especially in self-help groups. In this study, we tested and evaluated an educational concept developed for group leaders of cancer self-help groups on how to approach the topic of CAM in their peer groups.

methodsThe educational concept has been developed and piloted with health care professionals and representatives from different self-help organizations in Germany. It aims to inform and discuss the possibilities and limitations of CAM in terms of scientific evidence, to reflect user behavior, and to provide a guide on how to find and evaluate reliable and evidence-based information sources. First, self-help group leaders took part in an on-site training where they were educated on various CAM topics with the goal of being able to conduct the educational concept in their respective self-help groups. Then, the educated group leaders performed this concept in their groups. The educational concept was evaluated by both the group leaders and participants with respect to acceptance, usefulness, and satisfaction using paper-pencil questionnaires. The study was conducted in Germany based on an observational study design with a six-month follow-up. For the analyses, descriptive and univariate statistics for dependent samples were used.

resultsA total of n = 50 interested group leaders conducted the educational program in their groups. The most common implementation barriers were organizational or structural problems, as well as the feeling of being overwhelmed with managing the program in their groups. A total of n = 423 participants were educated with this program by their respective group leaders. The majority felt satisfied with the educational program and improved their knowledge about CAM. At the six months follow-up (T2), significantly more participants had consulted their physicians to inform themselves about CAM and felt more confident in finding reliable information about CAM.

conclusionsIn this observational study, we have managed to successfully implement an educational concept with respect to the topic of CAM in cancer self-help groups. Based on the results, the concept approach will be modified to include both a CAM- professional and group leader to train the self-help groups. In the future, the effects of the program should be tested by a randomized trial.

Indexed as

Complementary TherapiesNeoplasmsPeer GroupSelf-Help GroupsAdultAgedFemaleGermanyHumansMaleMiddle AgedPatient Education as TopicSurveys and QuestionnairesComplementary and alternative medicineHealth literacyOncologyPatient informationSelf-help group

Identifiers

PMID39427169
PMCPMC11491026

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.