ArticleResearch involvement and engagement2024
How can equity, diversity, and inclusion (EDI) principles be incorporated into research excellence with industry and community partners? Lessons learned from Canada and Australia on projects with a dementia focus.
Article in Research involvement and engagement, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.
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Who cites it
5 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Implementing Namaste Care in nursing care homes for people with advanced dementia: a systematically constructed review with framework synthesis.BMC geriatrics · 2025Pooled it
- Deliberative dialogue for co-design, co-implementation and co-evaluation of health-promoting interventions: a scoping review protocol.Research involvement and engagement · 2025Review
- Engaging community to co-design learning health systems: lessons from storytelling and Design Jam, a community case study from British Columbia, Canada.Frontiers in health services · 2025Article
- Exploring intergenerational interactions with tiny social robots: a qualitative study.Frontiers in dementia · 2025Article
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Authors and funding
8 authors.
Funding
Abstract
backgroundThe rapid advancement of gerontechnology, technologies for older adults, needs a collaboration that integrates the efforts of researchers, industry and community partners. Multisector collaboration fosters a holistic view of technologies, merging industry expertise, academic rigour, and the lived experiences of older adults and caregivers. This paper explores the role of Equity, Diversity, and Inclusion (EDI) perspectives in Patient and Public Involvement (PPI).
methodsWe present two case studies from Canada and Australia. Study One involves a dementia television project, and Study Two is an innovative rural dementia care project. Data sources included transcripts of the case studies' focus groups, research meeting notes, and associated study publications between 2021 and 2023 and 2016-2024, respectively. Utilizing Rolfe's reflective model, we reflected on lessons learned regarding challenges, strategies, and their implications for future research. Our analysis focused on two questions: (1) What were the common challenges of partnering with industry and PPI in the research process? And (2) How can EDI be applied to help overcome those challenges?
resultsThematic analysis identified five common themes of challenges and ten practical strategies. The challenges are (1) experiential bias, (2) underrepresentation, (3) communication gaps, (4) mistrust and (5) power dynamics. Based on the lessons learned, we identified ten practical strategies using EDI principles: (1) seek diverse representation, (2) establish transparent agreements, (3) adopt inclusive language and cultural sensitivity, (4) apply flexibility to learn and adapt, (5) embed team reflection (6) take time to build trust and relationships, (7) facilitate meaningful engagement, (8) provide equitable recognition and opportunity, (9) foster a respectful environment for knowledge transfer, and (10) cultivate a long-term sustained relationship.
conclusionThe older population is diverse, and their needs are complex. EDI considerations contribute to fostering research excellence and maximizing the potential of PPI to develop technologies to improve aging experiences that truly meet the diverse needs of older adults for societal impact. Multisector collaboration requires clear communication and intentional efforts to build trust. EDI considerations should be embedded at every stage of the research process. This paper outlines common challenges, strategies, and implications as practical tips for future research and practice.
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