Evidence map›Paper›PMID 39419493›Full record

ArticleJMIR cancer2024

An mHealth App to Support Caregivers in the Medical Management of Their Child With Cancer: Beta Stage Usability Study.

Emily L Mueller, Anneli R Cochrane, Madison E Campbell, Sarah Nikkhah, Richard J Holden, Andrew D Miller

Abstract read
In one paragraph

Article in JMIR cancer, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Emily L MuellerPediatric Accelerator for Careers Engaged in Research, Indiana University School of Medicine, Indianapolis, IN, United States.ORCID 0000-0001-6195-4367
Anneli R Cochrane *Pediatric Accelerator for Careers Engaged in Research, Indiana University School of Medicine, Indianapolis, IN, United States.ORCID 0000-0003-2325-5391
Madison E Campbell *Indiana University-Purdue University Indianapolis, Indianapolis, IN, United States.ORCID 0000-0002-4417-5940
Sarah Nikkhah *Human-Centered Computing Department, School of Informatics and Computing, Indiana University-Purdue University Indianapolis, Indianapolis, IN, United States.ORCID 0000-0002-5956-1027
Richard J Holden *Health & Wellness Design, School of Public Health, Indiana University-Bloomington, Bloomington, IN, United States.ORCID 0000-0002-3603-6158
Andrew D Miller *Human-Centered Computing Department, School of Informatics and Computing, Indiana University-Purdue University Indianapolis, Indianapolis, IN, United States.ORCID 0000-0002-6152-6968

Funding

Utilizing mHealth Technology to Support Caregivers in the Medical Management of their Child with CancerK08CA230218 · NCI · INDIANA UNIVERSITY INDIANAPOLIS · PI MUELLER, EMILY L · 2019 to 2023
$1.1M
NCI NIH HHS K08 CA230218
6 · The paper itself

Abstract

backgroundPrevious research demonstrated that caregivers of children with cancer desired a mobile health (mHealth) tool to aid them in the medical management of their child. Prototyping and alpha testing of the Cope 360 app (Commissioning Agents, Inc) resulted in improvements in the ability to track symptoms, manage medications, and prepare for urgent medical needs.

objectiveThis study aims to engage caregivers of children with cancer in beta testing of a smartphone app for the medical management of children with cancer, assess acceptance, identify caregivers' perceptions and areas for improvement, and validate the app's design concepts and use cases.

methodsIn this pilot, study caregivers of children with cancer used the Cope 360 mHealth app for 1 week, with the goal of daily logging. Demographics and a technology acceptance survey were obtained from each participant. Recorded semistructured interviews were transcribed and analyzed iteratively using NVivo (version 12, QSR International) and analyzed for information on usage, perceptions, and suggestions for improvement.

resultsA total of 10 caregivers participated in beta testing, primarily women (n=8, 80%), married, with some college education, and non-Hispanic White (n=10, 100%). The majority of participants (n=7, 70%) had children with acute lymphocytic leukemia who were being treated with chemotherapy only (n=8, 80%). Overall, participants had a favorable opinion of Cope 360. Almost all participants (n=9, 90%) believed that using the app would improve their ability to manage their child's medical needs at home. All participants reported that Cope 360 was easy to use, and most would use the app if given the opportunity (n=8, 80%). These values indicate that the app had a high perceived ease of use with well-perceived usefulness and behavioral intention to use. Key topics for improvement were identified including items that were within the scope of change and others that were added to a future wish list. Changes that were made based on caregiver feedback included tracking or editing all oral and subcutaneous medications and the ability to change the time of a symptom tracked or medication administered if unable to do so immediately. Wish list items included adding a notes section, monitoring skin changes, weight and nutrition tracking, and mental health tracking.

conclusionsThe Cope 360 app was well received by caregivers of children with cancer. Our validation testing suggests that the Cope 360 app is ready for testing in a randomized controlled trial to assess outcome improvements.

Indexed as

CaregiversMobile ApplicationsNeoplasmsTelemedicineAdolescentAdultChildChild, PreschoolFemaleHumansMaleMiddle AgedPilot ProjectsSurveys and QuestionnairescaregiverschildrenmHealthmobile phonesoncologysupportive care

Identifiers

PMID39419493
PMCPMC11528164

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.