Evidence map›Paper›PMID 39416352›Full record

ArticleBelitung nursing journal2024

Dementia knowledge of family caregivers in Indonesia: A cross-sectional survey study.

Sharon Andrews, Sri Mulyani, Azam David Saifullah, Michael Dirk, Tara Sani, Nelson Sudiyono, Thi Thuy Ha Dinh, D Y Suharya, Christantie Effendy, Kusrini S Kadar and 1 more

Abstract read
In one paragraph

Article in Belitung nursing journal, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Sharon AndrewsSchool of Nursing, College of Health and Medicine, University of Tasmania, New South Wales, Australia.ORCID https://orcid.org/0000-0002-0996-0118
Sri MulyaniDepartment of Mental Health and Community Nursing, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada, Yogyakarta, Indonesia.ORCID https://orcid.org/0000-0002-1280-1564
Azam David SaifullahDepartment of Mental Health and Community Nursing, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada, Yogyakarta, Indonesia.ORCID https://orcid.org/0000-0002-3180-4293
Michael DirkAlzheimer's Indonesia, ATZI Center, Jakarta, Indonesia.
Tara SaniAlzheimer's Indonesia, ATZI Center, Jakarta, Indonesia.ORCID https://orcid.org/0000-0002-8604-5888
Nelson SudiyonoSchool of Medicine and Health Science, Atma Jaya Catholic University of Indonesia, Jakarta, Indonesia.ORCID https://orcid.org/0000-0001-6452-9518
Thi Thuy Ha DinhSchool of Nursing, College of Health and Medicine, University of Tasmania, New South Wales, Australia.ORCID https://orcid.org/0000-0003-4485-0421
D Y SuharyaAlzheimer's Indonesia, ATZI Center, Jakarta, Indonesia.ORCID https://orcid.org/0000-0002-3623-4787
Christantie EffendyDepartment of Medical Surgical Nursing, Faculty of Medicine, Public Health and Nursing, Universitas Gadjah Mada, Yogyakarta, Indonesia.ORCID https://orcid.org/0000-0002-8823-229X
Kusrini S KadarFaculty of Nursing, Universitas Hasanuddin, South Sulawesi, Indonesia.ORCID https://orcid.org/0000-0002-9208-4859
Yuda TuranaSchool of Medicine and Health Science, Atma Jaya Catholic University of Indonesia, Jakarta, Indonesia.ORCID https://orcid.org/0000-0003-4527-0285

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: As the population ages, the prevalence of dementia in Indonesia is rapidly increasing. In Indonesia, dementia care is primarily provided by informal or family caregivers. However, there is limited information about these caregivers' understanding of dementia and the factors that may influence their knowledge. Given that family members are the primary source of dementia care in Indonesia, it is essential to understand their knowledge and identify any gaps to inform future educational interventions. Objective: To explore the knowledge of dementia among Indonesian family caregivers and identify the sociodemographic factors associated with dementia knowledge. Methods: A cross-sectional survey was conducted in 2022 with 200 family caregivers who were members of Alzheimer's Indonesia (ALZI) support groups. These caregivers received invitations via ALZI to complete a translated version of the Dementia Knowledge Assessment Scale (DKAS-I). Independent Results: Seventy-six family caregivers completed the DKAS-I (38% response rate). Respondents had an average age of 49 years, were mostly female, and the majority were children of people with dementia. Over two-thirds of the DKAS-I items were answered correctly by family caregivers, with the 'care considerations' domain scoring the highest. Age, relationship to the person with dementia (being a child), and prior dementia education were significantly correlated with higher dementia knowledge in our sample. Conclusion: Family caregivers of people living with dementia across 10 Indonesian provinces who were members of dementia support groups demonstrated moderate dementia knowledge. Targeted education is needed to address gaps in knowledge about communication and behavioural changes in people with dementia and other areas related to quality of care. There is an opportunity for gerontological nurses with specialised dementia knowledge to lead educational initiatives for family caregivers to enhance their capacity. Future research should also investigate the dementia knowledge of caregivers in the general population, who may be older and less educated compared to the participants in this study.

Indexed as

dementiafamilyIndonesiainformal caregiversknowledgesociodemographic factors

Identifiers

PMID39416352
PMCPMC11474272

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.