Evidence map›Paper›PMID 39411180›Full record

ArticleMultiple sclerosis journal - experimental, translational and clinical

Exploring the relationship between neurologists and older persons with multiple sclerosis through the lens of social support theory.

Mina Stanikić, Felix Gille, Jonas Schlomberg, Paola Daniore, Susanne Kägi, Andrew Chan, Christian P Kamm, Chiara Zecca, Pasquale Calabrese, Patrick Roth and 4 more

Abstract read
In one paragraph

Article in Multiple sclerosis journal - experimental, translational and clinical. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Assessing Unmet Social Needs in Multiple Sclerosis Care in Australia: A Qualitative Assessment of Feasibility, Barriers and Enablers.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Mina StanikićEpidemiology, Biostatistics and Prevention Institute, University of Zurich (UZH), Zurich, Switzerland.ORCID https://orcid.org/0000-0002-6477-7164
Felix GilleInstitute for Implementation Science in Health Care, University of Zurich (UZH), Zurich, Switzerland.
Jonas SchlombergInstitute for Implementation Science in Health Care, University of Zurich (UZH), Zurich, Switzerland.
Paola DanioreInstitute for Implementation Science in Health Care, University of Zurich (UZH), Zurich, Switzerland.
Susanne KägiSwiss Multiple Sclerosis Society, Zurich, Switzerland.
Andrew ChanDepartment of Neurology, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland.
Christian P KammDepartment of Neurology, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland.
Chiara ZeccaDepartment of Neurology, Neurocenter of Southern Switzerland, Ospedale Regionale di Lugano, EOC, Lugano, Switzerland.ORCID https://orcid.org/0000-0002-9990-3431
Pasquale CalabreseNeuropsychology and Behavioral Neurology Unit, Division of Cognitive and Molecular Neuroscience, University of Basel, Basel, Switzerland.
Patrick RothDepartment of Neurology and Brain Tumor Center, University Hospital and University of Zurich, Zurich, Switzerland.
Claudia BaumRehabilitation Clinic Zihlschlacht, Zihlschlacht, Switzerland.ORCID https://orcid.org/0009-0002-0656-4854
Irene RapoldCitizen Scientist.
Milo A PuhanEpidemiology, Biostatistics and Prevention Institute, University of Zurich (UZH), Zurich, Switzerland.
Viktor von WylEpidemiology, Biostatistics and Prevention Institute, University of Zurich (UZH), Zurich, Switzerland.ORCID https://orcid.org/0000-0002-8754-9797

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Although healthcare practitioners (HCPs) are a valuable source of social support, research on support provided by neurologists to older persons with multiple sclerosis (pwMS) remains limited. Objectives: To explore expectations of pwMS aged 55 years or older regarding MS care and to identify support types, met and unmet needs within their relationship with neurologists. Methods: Utilizing a mixed-methods approach, we analyzed survey data from Swiss Multiple Sclerosis Registry participants. Quantitative data included Likert scales gauging the importance of various aspects of MS care for pwMS both in and out of neurological care. Qualitative data were derived from three open-ended questions, focusing on neurologist-provided support for pwMS in neurological care. Data underwent descriptive and deductive thematic analysis, using Cutrona and Suhr framework for coding social support. Results: Among the 286 participants (median age 61.0 years, interquartile range (IQR) 57.0-66.0; median disease duration 23.5 years, IQR 15.0-31.0), 84.6% ( Conclusions: Older pwMS see neurologists as adequate providers of comprehensive support and particularly value neurologists' sufficient availability, informational and emotional support. Areas for improvement include attention to complementary medicine and empathy.

Indexed as

agingdoctor–patient relationshipMultiple sclerosispatient perspectivesocial support

Identifiers

PMID39411180
PMCPMC11475095

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.