Evidence map›Paper›PMID 39395124›Full record

ArticleJournal of autism and developmental disorders2026

"He Just Wants Someone to Hear Him and Listen to Him": Barriers and Facilitators to Autistic Youth with Anxiety Receiving Quality Mental Healthcare.

Daylin Delgado, Shannon C LaPoint, Grace Lee Simmons, Julia M Heinly, Whitney S Shepherd de, Bridgett Kiernan, Lauren Brookman-Frazee, Eric A Storch, Brenna B Maddox

Abstract read
In one paragraph

Article in Journal of autism and developmental disorders, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Experiences of self-harm, suicidal ideation and mental health care among autistic youth.Autism : the international journal of research and practice · 2026
    Article
  2. Young Adulthood Milestones and Supports Within the Context of Autism.Journal of autism and developmental disorders · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Daylin DelgadoTEACCH Autism Program, University of North Carolina at Chapel Hill, Chapel Hill, USA.
Shannon C LaPointTEACCH Autism Program, University of North Carolina at Chapel Hill, Chapel Hill, USA.
Grace Lee SimmonsTEACCH Autism Program, University of North Carolina at Chapel Hill, Chapel Hill, USA.
Julia M HeinlyTEACCH Autism Program, University of North Carolina at Chapel Hill, Chapel Hill, USA.
Whitney S Shepherd deDepartment of Psychiatry and Behavioral Sciences, Baylor College of Medicine, 1977 Butler Blvd, Suite 4-400, Houston, TX, 77030, USA.
Bridgett KiernanTEACCH Autism Program, University of North Carolina at Chapel Hill, Chapel Hill, USA.
Lauren Brookman-FrazeeDepartment of Psychiatry, University of California, San Diego, USA.
Eric A StorchDepartment of Psychiatry and Behavioral Sciences, Baylor College of Medicine, 1977 Butler Blvd, Suite 4-400, Houston, TX, 77030, USA. Eric.Storch@bcm.edu.ORCID http://orcid.org/0000-0002-7631-3703
Brenna B MaddoxTEACCH Autism Program, University of North Carolina at Chapel Hill, Chapel Hill, USA.

Funding

Feasibility, Preliminary Effectiveness, and Sustainability of a Cognitive-BehavioralTherapy Program Tailored for Youth with Autism and Anxiety Treated in Real-WorldCommunity-Based ClinicsR34MH128439 · NIMH · UNIV OF NORTH CAROLINA CHAPEL HILL · PI STORCH, ERIC A. · 2022 to 2024
$739k
NIMH NIH HHS 1R34MH128439-01NIMH NIH HHS R34 MH128439
6 · The paper itself

Abstract

About half of autistic youth present with clinically interfering anxiety. Psychotherapies with exposure-focused elements are effective in academic clinical settings and controlled trials. However, there is relatively less research examining the implementation of modified interventions for autistic youth with anxiety in community mental health settings. The current study explores community members' perceptions of barriers and facilitators that impact autistic youth with anxiety's receipt of quality mental health services in their community. Semi-structured interviews were conducted with 15 autistic youth, 15 caregivers of autistic youth, 11 community mental health clinicians, and 8 community mental health clinic leaders. Interviews were analyzed thematically. Participants shared their experiences with facilitators and barriers to autistic youth with anxiety receiving quality mental healthcare. Themes that emerged include (1) characteristics of the autistic youth, (2) engagement of autistic youth and caregivers, (3) building rapport between providers, autistic youth, and caregivers, (4) access to mental health services, (5) intervention fit, and (6) provider characteristics. Based on participants' perspectives and suggestions, future directions for anxiety treatment programs tailored for autistic youth include building more time into the intervention sessions to build rapport, incorporating autistic youth's preferences into provider matches, and providing families with more psychoeducation.

Indexed as

AnxietyAnxiety DisordersAutistic DisorderHealth Services AccessibilityMental Health ServicesAdolescentAdultCaregiversChildFemaleHumansMaleQualitative ResearchAnxietyAutismBarriersFacilitatorsMental healthcare

Identifiers

PMID39395124
PMCPMC13091208

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.