Evidence map›Paper›PMID 39392423›Full record

ArticleJournal of the National Cancer Institute2025

The intersecting time, administrative, and financial burdens of a cancer diagnosis.

Helen M Parsons, Arjun Gupta, Patricia Jewett, Rachel I Vogel

Abstract read
In one paragraph

Article in Journal of the National Cancer Institute, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
30citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

30 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Time toxicity in cancer care: a systematic review of definitions and measurement methods.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Pooled it
  2. Article
  3. Article
  4. How adolescent and young adult cancer is portrayed in movies: reflections for supportive care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  5. Beyond the patient: how providers perceive and experience non-medical barriers in gastrointestinal cancer care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  6. Healthcare contact days in cancer survivors relative to those with no cancer history.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  7. Review
  8. Article
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  10. Article
  11. Article
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  14. Review
  15. Observational
  16. Article
  17. Review
  18. Patient-, care partner-, and clinician-proposed solutions to address the time toxicity of cancer care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Helen M ParsonsDivision of Health Policy and Management, University of Minnesota, Minneapolis, MN, United States.ORCID 0000-0003-3822-9858
Arjun GuptaMasonic Cancer Center, University of Minnesota, Minneapolis, MN, United States.ORCID 0000-0003-0875-4731
Patricia JewettDivision of Hematology, Oncology and Transplantation, University of Minnesota, Minneapolis, MN, United States.ORCID 0000-0001-5313-0106
Rachel I VogelMasonic Cancer Center, University of Minnesota, Minneapolis, MN, United States.ORCID 0000-0003-0149-8464

Funding

Women's CancerP30CA077598 · NCI · UNIVERSITY OF MINNESOTA TWIN CITIES · PI Jeffrey S. Miller · 1998 to 2026
$100.4M
Time toxicity of cancer: the time demands of cancer-related activities and their impact on well-being and quality of lifeR01CA277714 · NCI · UNIVERSITY OF MINNESOTA · PI Rachel Isaksson Vogel, Julian Wolfson · 2023 to 2026
$1.4M
Masonic Cancer Center 1R01CA277714-01NCI NIH HHS P30 CA077598NCI NIH HHS R01 CA277714NIH HHS P30 CA77598
6 · The paper itself

Abstract

Cancer and its care create substantial financial, time, and administrative burdens both for patients and their loved ones. Although cancer-related financial burdens have been well documented in the past decade, time and administrative burdens of cancer care have received substantially less attention. We define time burdens as the burden patients and caregivers experience due to the time needed to complete cancer-related treatment and tasks that take away from other life responsibilities. Relatedly, we conceptualize administrative burdens as those burdens patients and caregivers experience due to cancer-related, resource-consuming bureaucratic and logistical tasks. Finally, financial hardship can be conceptualized as problems patients experience related to the cost of medical care. These burdens do not exist in isolation; time, administrative, and financial burdens intersect with and compound each other. Currently, we have limited evidence-based measures on the objective (eg, scheduling time, transportation, wait time) and subjective (eg, mental, emotional and physical stress) measures of time and administrative burden. We have even more limited evidence of the risk factors for and outcomes from increased time and administrative burdens, and how they differentially impact populations across social and demographic groups. In this commentary, we present a research agenda to map, measure, evaluate, and mitigate the time, administrative, and financial burdens of cancer and its care.

Indexed as

CaregiversCost of IllnessHealth Care CostsNeoplasmsHumansTime Factors

Identifiers

PMID39392423
PMCPMC11972685

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.