Evidence map›Paper›PMID 39386998›Full record

ArticleInternational journal of public health2024

Lower Healthcare Access and Its Association With Individual Factors and Health-Related Quality of Life in Adults With Rare Diseases in Switzerland.

Susanne Wehrli, Andrew A Dwyer, Matthias R Baumgartner, Carmen Lehmann, Markus A Landolt

Abstract read
In one paragraph

Article in International journal of public health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Susanne WehrliDivision of Child and Adolescent Health Psychology, Department of Psychology, University of Zurich, Zurich, Switzerland.
Andrew A DwyerConnell School of Nursing, Boston College, Chestnut Hill, MA, United States.
Matthias R BaumgartnerChildren's Research Center, University Children's Hospital Zurich, Zurich, Switzerland.
Carmen LehmannDivision of Child and Adolescent Health Psychology, Department of Psychology, University of Zurich, Zurich, Switzerland.
Markus A LandoltDivision of Child and Adolescent Health Psychology, Department of Psychology, University of Zurich, Zurich, Switzerland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objectives: This study aims to determine clusters of access to healthcare among adults with rare diseases in Switzerland, identify associated individual characteristics of access, and impact on health-related quality of life (HRQoL). Methods: Swiss adults ( Results: We identified two patient clusters: higher ( Conclusion: Findings highlight the need for comprehensive assessment of healthcare access in adults with rare diseases and identifies potential targets for tailored interventions.

Indexed as

Health Services AccessibilityQuality of LifeRare DiseasesAdultAgedFemaleHumansMaleMiddle AgedSocioeconomic FactorsSurveys and QuestionnairesSwitzerlandYoung Adulthealthcare accesshealth outcomeshealth-related quality of lifequality of liferare disease

Identifiers

PMID39386998
PMCPMC11461209

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.