Evidence map›Paper›PMID 39384236›Full record

ArticleBMJ open2024

Exploring the early experiences of assisted dying in Aotearoa New Zealand: a qualitative study protocol.

Jessica Young, Aida Dehkhoda, Annabel Ahuriri-Driscoll, Gary Cheung, Kate Diesfeld, Richard Egan, Te Hurinui Karaka-Clarke, Tess Moeke-Maxwell, Kate Reid, Jackie Robinson and 3 more

Abstract read
In one paragraph

Article in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Jessica YoungSchool of Health, Victoria University of Wellington, Wellington, New Zealand jessica.young@vuw.ac.nz.ORCID http://orcid.org/0000-0002-0044-6112
Aida DehkhodaSchool of Health, Victoria University of Wellington, Wellington, New Zealand.ORCID http://orcid.org/0000-0002-0044-6112
Annabel Ahuriri-DriscollSchool of Health Sciences, University of Canterbury, Christchurch, New Zealand.ORCID http://orcid.org/0000-0002-4046-5019
Gary CheungDepartment of Psychological Medicine, The University of Auckland, Auckland, New Zealand.ORCID http://orcid.org/0000-0002-0239-9356
Kate DiesfeldSchool Interprofessional Health Studies, Auckland University of Technology, Auckland, New Zealand.ORCID http://orcid.org/0000-0002-8117-551X
Richard EganDepartment of Preventive and Social Medicine, University of Otago, Dunedin, New Zealand.ORCID http://orcid.org/0000-0001-9964-6175
Te Hurinui Karaka-ClarkeSchool of Teacher Education, University of Canterbury, Christchurch, New Zealand.ORCID http://orcid.org/0000-0001-7893-2535
Tess Moeke-MaxwellSchool of Nursing, The University of Auckland, Auckland, New Zealand.ORCID http://orcid.org/0000-0002-3980-3228
Kate ReidSchool of Health Sciences, University of Canterbury, Christchurch, New Zealand.ORCID http://orcid.org/0000-0003-4499-7159
Jackie RobinsonSchool of Nursing, The University of Auckland, Auckland, New Zealand.ORCID http://orcid.org/0000-0002-9678-2005
Jeanne SnellingFaculty of Law, University of Otago, Dunedin, New Zealand.ORCID http://orcid.org/0000-0002-5920-9031
Ben WhiteAustralian Centre for Health Law Research, Queensland University of Technology Faculty of Business and Law, Brisbane, Queensland, Australia.ORCID http://orcid.org/0000-0003-3365-939X
Janine WintersBioethics Centre, University of Otago, Dunedin, New Zealand.ORCID http://orcid.org/0000-0002-4505-4032

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionIncreasing numbers of jurisdictions are legalising assisted dying (AD). Developing research protocols to study the experiences and outcomes of legislation is imperative. AD is a topic that, by nature of its complexity and inherent ethical issues, lends itself to qualitative research. Using the objectives of the statutory framework, this qualitative study aims to provide a robust review of the newly formed AD service in New Zealand and the extent to which it is safe, people-centred, dignity-enhancing, accessible and available equitably to all eligible people. METHODS AND ANALYSIS: The research uses an appreciative inquiry design to focus on what is working well, what could be improved, what constitutes the 'ideal' and how to enable people to achieve that ideal. We are using online semi-structured interviews and face-to-face focus groups to explore the experiences of key stakeholders: eligible/ineligible service users; eligible/ineligible service users with impairments; families of service users; AD providers; non-providers (providers who object to AD and others who are not directly involved in providing AD but are not opposed in principle); health service leaders; and Māori community members. An estimated 110 participants will be interviewed. We will conduct thematic and regulatory analyses of data. ETHICS AND DISSEMINATION: The ethical aspects of this study have been approved by the Northern A Health and Disability Ethics Committee through the full review pathway (2023 EXP 18493). To disseminate the findings, we will draft resources to support interviewee groups, to be developed with feedback from stakeholder meetings. We will submit evidence-based recommendations to inform the government review of the End of Life Choice Act 2019. Findings will be disseminated in peer-reviewed publications, conferences, webinars, media, stakeholder feedback sessions and accessible research briefings.

Indexed as

Qualitative ResearchSuicide, AssistedFocus GroupsHumansInterviews as TopicNew ZealandResearch DesignHealth ServicesHealth Services AccessibilityPalliative CareProtocols & guidelinesQualitative ResearchResearch Design

Identifiers

PMID39384236
PMCPMC11474669

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.