Evidence map›Paper›PMID 39381050›Full record

ArticleJournal of scleroderma and related disorders2024

Changes in work and adequacy of financial resources during COVID-19 among people with systemic sclerosis: A Scleroderma Patient-centered Intervention Network study.

Claire Adams, Elsa-Lynn Nassar, Marie-Eve Carrier, Linda Kwakkenbos, Richard S Henry, Gabrielle Virgili-Gervais, Sophie Hu, Susan J Bartlett, Catherine Fortuné, Amy Gietzen and 17 more

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In one paragraph

Article in Journal of scleroderma and related disorders, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

27 authors.

Claire AdamsLady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.
Elsa-Lynn NassarLady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.
Marie-Eve CarrierLady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.
Linda KwakkenbosDepartment of Clinical Psychology, Behavioural Science Institute, Radboud University, Nijmegen, The Netherlands.
Richard S HenryLady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.
Gabrielle Virgili-GervaisLady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.
Sophie HuLady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.
Susan J BartlettDepartment of Medicine, McGill University, Montreal, QC, Canada.
Catherine FortunéOttawa Scleroderma Support Group, Ottawa, ON, Canada.
Amy GietzenNational Scleroderma Foundation, Tri-State Chapter, Binghamton, NY, USA.
Karen GottesmanNational Scleroderma Foundation, Los Angeles, CA, USA.
Geneviève GuillotSclérodermie Québec, Montreal, QC, Canada.
Marie HudsonLady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.ORCID https://orcid.org/0000-0001-6718-2468
Amanda Lawrie-JonesScleroderma Australia, Melton, VIC, Australia.
Nancy LewisThe Scleroderma Patient-centered Intervention Network, Montreal, QC, Canada.
Vanessa MalcarneDepartment of Psychology, San Diego State University, San Diego, CA, USA.
Maureen D MayesUniversity of Texas McGovern School of Medicine, Houston, TX, USA.
Scott B PattenDepartment of Community Health Sciences, University of Calgary, Calgary, AB, Canada.
Michelle RichardScleroderma Atlantic, Halifax, NS, Canada.
Maureen SauvéScleroderma Society of Ontario, Hamilton, ON, Canada.
John VargaDivision of Rheumatology, Department of Medicine, University of Michigan, Ann Arbor, MI, USA.
Joep WellingNVLE Dutch patient organization for systemic autoimmune diseases, Utrecht, The Netherlands.
Robyn WojeckThe University of Rhode Island, Kingston, RI, USA.
Luc MouthonCentre de Référence Maladies Autoimmunes Systémiques Rares d'Ile de France, Service de Médecine Interne, Hôpital Cochin, Assistance Publique-Hôpitaux de Paris (AP-HP), Paris, France.
Andrea BenedettiDepartment of Medicine, McGill University, Montreal, QC, Canada.
Brett D ThombsLady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.ORCID https://orcid.org/0000-0002-5644-8432
SPIN Investigators

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction/objective: We investigated (1) work status changes during COVID-19, (2) financial resource adequacy, (3) preferences for work requirements (e.g. remote, workplace, mixed) and (4) work requirements versus preferences, among people with systemic sclerosis. Methods: This was a cross-sectional study of participants in the Scleroderma Patient-centered Intervention Network COVID-19 Cohort, which enrolled participants from the ongoing Scleroderma Patient-centered Intervention Network Cohort and externally in April 2020. In August 2022, participants completed questions on work status, financial well-being using the Consumer Financial Protection Bureau Financial Well-Being Scale, work requirements and work requirement preferences. Results: A total of 298 participants with systemic sclerosis were included. Mean age was 58.6 years (SD = 11.4). There were 101 (34%) participants working at the start of the pandemic and still working in August 2022, 179 (60%) not working at the start of the pandemic and still not working, 10 (3%) who stopped working after April 2020 and 8 (3%) who started working. Mean financial well-being did not change from April 2020 to August 2022 (difference: 0.2 points; 95% confidence interval: -1.1 to 0.7). Working participants (N = 109) preferred flexible work requirements (N = 34, 31%) or working entirely remotely (N = 32, 29%), but most were required to work entirely at a workplace (N = 35, 32%) or combined workplace and remotely with a fixed schedule (N = 31, 28%). Conclusion: Work status and financial well-being did not change substantively among people with systemic sclerosis during the pandemic. Flexible work policies may support people with systemic sclerosis to work.

Indexed as

COVID-19employmentfinancial well-beingsclerodermasystemic sclerosis

Identifiers

PMID39381050
PMCPMC11457775

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.