ArticleJournal of applied research in intellectual disabilities : JARID2024
Parent Perspectives on Parent-Mediated Intervention for Young Children With Down Syndrome.
Article in Journal of applied research in intellectual disabilities : JARID, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed.
- Values of Individuals With Rare Genetic Neurodevelopmental Disorders and Their Family/Caregivers in Healthcare: A Scoping Review to Inform Guideline Development.Journal of intellectual disability research : JIDR · 2026Article
- What Motivates Parents of Young Children With Down Syndrome to Participate in Research: A Focus Group Analysis.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Feasibility and Preliminary Efficacy of an Executive Function Intervention for Young Children With Down Syndrome.Journal of intellectual disability research : JIDR · 2025Article
- Acceptability of a Novel Parent-Mediated Executive Function Intervention for Young Children With Down Syndrome in Italy.Journal of applied research in intellectual disabilities : JARID · 2025Article
- A Review of Clinical Trials in Down Syndrome.International review of research in developmental disabilities · 2025Article
- Considerations for developing syndrome-informed early interventions for children with neurogenetic conditions.International review of research in developmental disabilities · 2024Article
- A Customised, Intensive Parent-Child Interaction Therapy for Children With Down Syndrome: Findings From a Real-World Pilot Effectiveness Study.International journal of language & communication disordersArticle
- The Power of Partnership: Adapting Early Language Intervention for Children With Down Syndrome Through Family-Researcher Collaboration.International journal of language & communication disordersArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
14 authors.
Funding
Abstract
backgroundParent-mediated intervention (PMI) is a potentially scalable approach for tailored interventions in neurogenetic conditions like Down syndrome (DS). Because PMIs require ongoing parent engagement, they must be developed in alignment with the needs of intended users. The present study examined caregiver opinions and preferences to inform the development of syndrome-informed interventions for children with DS.
methodParents of children with DS (n = 34) participated in focus groups discussing PMI. Interviews were transcribed and a thematic analysis was applied to code the data.
resultsThree themes were identified: advantages of PMI, disadvantages of PMI and preferred features of PMI. To align with parent preferences, future PMIs for children with DS should require a brief time commitment, blend intervention activities into daily routines and include family members in activities.
conclusionsFindings have implications for developing novel interventions to support early development in children with DS and other neurogenetic conditions.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.