Evidence map›Paper›PMID 39377795›Full record

ArticleDysphagia2025

Daily Challenges and Resources of Adults with Chronic Dysphagia: A Qualitative Investigation.

Aurora Ninfa, Giulia Morandi, Antonio Schindler, Antonella Delle Fave

Abstract read
In one paragraph

Article in Dysphagia, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Aurora NinfaDepartment of Pathophysiology and Transplantation, University of Milan, Milan, Italy.ORCID http://orcid.org/0000-0001-9671-980X
Giulia MorandiDepartment of Pathophysiology and Transplantation, University of Milan, Milan, Italy.ORCID http://orcid.org/0009-0001-0525-2341
Antonio SchindlerDepartment of Biomedical Sciences, University of Milan, Milan, Italy.ORCID http://orcid.org/0000-0002-8767-5179
Antonella Delle FaveDepartment of Pathophysiology and Transplantation, University of Milan, Milan, Italy. antonella.dellefave@unimi.it.ORCID http://orcid.org/0000-0003-1381-6538

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Identifying and addressing daily challenges and resources associated with chronic oropharyngeal dysphagia (OD) is a pivotal, though still neglected component of person-centred care, yet overlooked in research studies. To investigate these dimensions, 25 Italian adults with chronic OD due to cancer or neurodegenerative diseases participated in semi-structured interviews, designed following a modified framework analysis approach. Two researchers independently transcribed and coded interviews, elaborated a working analytical framework, indexed and charted the data, solving discrepancies through negotiated agreement and discussion with a third researcher. Proportion agreement on extracted quotations was calculated. Overall, 457 quotations were extracted from the interviews (88% agreement). Daily challenges pertained to physical, practical, and social domains; most participants reported OD-related problems; almost half mentioned care needs and obstacles in using healthcare services. Concerning resources in OD management, most participants referred to problem-focused and meaning-focused coping strategies, personal capabilities, and support from family and healthcare services. Finally, almost half of the participants reported OD-related changes in life view and meaning. Findings suggest that adjusting to OD implies challenges and resource mobilization in different life domains. Future studies should longitudinally elucidate the dynamics of positive adjustment, to promote patient-centred OD care based on individually perceived needs and challenges, and to inform healthcare policies.

Indexed as

Deglutition DisordersAdaptation, PsychologicalAdultAgedAged, 80 and overChronic DiseaseFemaleHumansItalyMaleMiddle AgedPatient-Centered CareQualitative ResearchQuality of LifeChronicityDaily experienceDysphagiaPositive adjustmentSwallowing disorders

Identifiers

PMID39377795
PMCPMC12145295

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.