Evidence map›Paper›PMID 39376162›Full record

Observational studyThe Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association2025

Current Ear and Hearing Care Practices for Infants and Toddlers with Cleft Palate in the United States.

Ursula M Findlen, Anna Meehan, Gregory Allen, Deborah S F Kacmarynski, Jonathan Grischkan, Emily C Nightengale, Lauren C Alexander, Sarah Hatch Pollard, Adriane L Baylis, CORNET Consortium

Abstract readObservational Study
In one paragraph

Observational study in The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Addressing Cleft Care in Low- and Middle-Income Countries Beyond Cleft Lip and Palate with Improvement of Otolaryngology, Audiology, and Speech Services.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Ursula M FindlenAudiology Department, Nationwide Children's Hospital, Columbus, OH, USA.ORCID 0000-0001-8971-0700
Anna MeehanCraniofacial Center, Seattle Children's Hospital, Seattle, WA, USA.
Gregory AllenDepartment of Otolaryngology - Head & Neck Surgery, University of Colorado School of Medicine, Aurora, CO, USA.ORCID 0000-0002-7138-2240
Deborah S F KacmarynskiDepartment of Otolaryngology - Head and Neck Surgery, Carver College of Medicine, The University of Iowa, Iowa City, IA, USA.
Jonathan GrischkanDepartment of Pediatric Otolaryngology, Nationwide Children's Hospital, Columbus, OH, USA.
Emily C NightengaleAudiology Department, Children's Hospital Colorado, Aurora, CO, USA.
Lauren C AlexanderAudiology Department, Children's Hospital Colorado, Aurora, CO, USA.
Sarah Hatch PollardDepartment of Communication Science and Disorders, University of Utah, Salt Lake City, UT, USA.ORCID 0000-0003-3359-1591
Adriane L BaylisDepartment of Plastic and Reconstructive Surgery, Nationwide Children's Hospital, Columbus, OH, USA.ORCID 0000-0003-4148-4729
CORNET Consortium

Funding

A comparative effectiveness study of speech and surgical treatments using a Cleft Palate Registry/Research Outcomes Network.R01DE027493 · NIDCR · UNIVERSITY OF UTAH · PI CHAPMAN, KATHY L · 2018 to 2022
$6.2M
NIDCR NIH HHS R01 DE027493
6 · The paper itself

Abstract

ObjectiveTo examine ear and hearing clinical practices across American Cleft Palate-Craniofacial Association (ACPA) approved teams in the United States.DesignMulti-site prospective, observational, longitudinal study.SettingSeventeen Cleft Palate Teams in the United States.Patients, ParticipantsChildren with cleft palate, with or without cleft lip (CP ± L), born between 2015 and 2022, evaluated by 18 months (n = 1246).InterventionsNone.Main Outcome Measure(s)Standard of care otolaryngology and audiology appointments evaluated in the context of whether otolaryngology and audiology services were provided as embedded care within the team visit or as ancillary services.ResultsOver 71% of infants passed newborn hearing screening (NBHS). By age 18 months, only 40% of infants received audiologic follow-up while 93.6% of children received otolaryngology care. Follow-up was significantly better for infants served by teams with embedded providers versus those who refer families for ancillary services; the odds of seeing an audiologist by 18 months were three times as high among participants seen by teams with embedded audiology (OR = 3.25; CI = 2.0, 5.2) while those seen by teams with embedded otolaryngologists had more than double the odds of seeing an otolaryngologist by 18 months (OR = 2.2; CI = 1.5, 3.2).ConclusionsThere is considerable variability across ACPA-approved centers in the US regarding the timing and completion of otolaryngology and audiologic follow-up for children with CP ± L. This study highlights the importance of following established standards of care and the impact that team composition and access to clinical services can have on equity of care.

Indexed as

AudiologyCleft PalateOtolaryngologyChild, PreschoolFemaleHearing TestsHumansInfantInfant, NewbornLongitudinal StudiesMaleNeonatal ScreeningProspective StudiesUnited Statescleft palatehearing lossoutcomespediatricsteam care

Identifiers

PMID39376162
PMCPMC13523174

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.