Evidence map›Paper›PMID 39376020›Full record

ReviewExpert review of pharmacoeconomics & outcomes research2025

How can patients shape digital medicine? A rapid review of patient and public involvement and engagement in the development of digital health technologies for neurological conditions.

Megan Hanrahan, Cameron Wilson, Alison Keogh, Sandra Barker, Lynn Rochester, Katie Brittain, Jack Lumsdon, Ríona McArdle

Abstract readReview
In one paragraph

Review in Expert review of pharmacoeconomics & outcomes research, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
  2. Review
  3. Evaluating Patient and Public Involvement and Engagement Activity Within the 3DPiPPIn Trial: A Qualitative Exploration of Contributors' Perspectives on Their Impact.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  4. Review
  5. Article
  6. Article
  7. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Megan HanrahanPopulation Health Sciences Institute, Newcastle University, Newcastle, UK.
Cameron WilsonSchool of Clinical Medicine, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK.
Alison KeoghSchool of Medicine, Trinity College Dublin, Dublin, Ireland.
Sandra BarkerPublic Patient Advisory Group, Newcastle University, Newcastle, UK.
Lynn RochesterTranslational and Clinical Research Institute, Newcastle University, Newcastle, UK.
Katie BrittainPopulation Health Sciences Institute, Newcastle University, Newcastle, UK.
Jack LumsdonPopulation Health Sciences Institute, Newcastle University, Newcastle, UK.ORCID 0009-0001-8985-0209
Ríona McArdleTranslational and Clinical Research Institute, Newcastle University, Newcastle, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionPatient and Public Involvement and Engagement (PPIE) involves working '

methodsKey terms were input into six databases. Included articles were qualitative studies or PPIE activities involving patient perspectives in shaping digital health technologies for neurological conditions. Bias was evaluated using the NICE qualitative checklist, with reporting following PRISMA guidelines.

results2,140 articles were identified, with 28 included. Of these, 25 were qualitative studies, and only three were focused PPIE activities. Patient involvement was mostly limited to one-off consultations during development.There was little evidence of PPIE during implementation, and minimal reporting on its impact.

conclusionsPPIE has been inconsistently reported in this research area, highlighting the need for more guidance and best-practice examples This review used a UK-based definition of PPIE, which may have excluded relevant activities from other countries. Future reviews should broaden terminology to capture PPIE integration globally.

Indexed as

Biomedical TechnologyCommunity ParticipationDigital TechnologyNervous System DiseasesPatient ParticipationDigital HealthHumansQualitative ResearchDigital healthnervous systems diseasesneurocognitive disorderspatient involvementpatient participationqualitative researchreview

Identifiers

PMID39376020
PMCPMC11789707

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.