Evidence map›Paper›PMID 39371356›Full record

ArticleAutism in adulthood2024

Community Member Views on Autism Intervention: Effects of Closeness to Autistic People with Intellectual Disabilities And Nonspeaking Autistic People.

Lynnette Hersh, Patrick Dwyer, Steven K Kapp, Sergey Shevchuk-Hill, Ava N Gurba, Elizabeth Kilgallon, Ally Pax Arcari Mair, David S Chang, Susan M Rivera, Kristen Gillespie-Lynch

Abstract read
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In one paragraph

Article in Autism in adulthood, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Review
  3. The neurodiversity movement vs. the medical model of autism.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2026
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Lynnette HershDepartment of Psychology, University of California, Davis, California, USA.
Patrick DwyerDepartment of Psychology, University of California, Davis, California, USA.ORCID https://orcid.org/0000-0003-1779-5252
Steven K KappCentre for Interaction, Development and Diversity, University of Portsmouth, Portsmouth, UK.ORCID https://orcid.org/0000-0002-4440-1688
Sergey Shevchuk-HillCollege of Staten Island, City University of New York, New York, New York, USA.
Ava N GurbaDepartment of Psychology, Stony Brook University, Stony Brook, New York, USA.ORCID https://orcid.org/0000-0001-8619-9716
Elizabeth KilgallonYale Child Study Center, Yale University, New Haven, Connecticut, USA.
Ally Pax Arcari MairSchool of Health in Social Science, University of Edinburgh, Edinburgh, UK.
David S ChangDepartment of Psychology, University of California, Davis, California, USA.
Susan M RiveraDepartment of Psychology, University of California, Davis, California, USA.
Kristen Gillespie-LynchCollege of Staten Island, City University of New York, New York, New York, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Controversy regarding the neurodiversity movement (NDM), the social and medical models of disability, autism intervention goals, and causal attributions of disability contributes to divides in the autistic and autism communities. The present study investigates the views of autistic and non-autistic autistic and autism community members on these topics. We explored whether these views are shaped by having close relationships to autistic people with intellectual disabilities (ID) and nonspeaking autistic (NSA) people. Methods: A total of 504 autistic and autism community members (278 autistic, 226 non-autistic) completed an online survey about theoretical models and intervention goals. Participants reported whether they had one or more close relationships with NSA people, autistic people with ID, neither, or both. Results: Overall, there was considerable consensus regarding desired intervention goals: normalization goals were generally opposed, while participants generally supported well-being, societal reform, supportive environment, and adaptive skill goals. While autistic participants reported less support for normalization and adaptive skills goals than non-autistic participants, they expressed somewhat more enthusiasm for societal reform and supportive environments than non-autistic people. Autistic people supported the NDM more and the medical model less than non-autistic people. Those close to autistic people with ID gave higher ratings to adaptive skill goals. On average, participants not close to autistic people with ID saw the challenges of those without ID as being slightly more due to environmental/social factors than the challenges of those with ID; there was no such statistical difference among those close to autistic people with ID. Conclusion: Further research investigating community views, with the inclusion of more autistic people with ID and NSA people themselves, is needed, but the results of this study suggest that the broader autistic and autism communities see NDM-consistent intervention goals as appropriate for all autistic people, including NSA people and those with ID. As autism interventions have often pursued unpopular normalization goals, this suggests directions for reform.

Indexed as

intellectual disabilityinterventionneurodiversitynonspeaking autismnormalization

Identifiers

PMID39371356
PMCPMC11447397

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.