Evidence map›Paper›PMID 39367385›Full record

ArticleBMC palliative care2024

The purpose of an individual care plan in pediatric palliative care according to healthcare professionals: a qualitative study.

C Y Joren, M C Kars, L C M Kremer, J C van Dijk, A M Habing, A M Tijs, A A Trampe, A A E Verhagen, J L Aris-Meijer

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

C Y JorenUniversity of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, Groningen, 9713 GZ, The Netherlands. c.y.joren@umcg.nl.
M C KarsCenter of Expertise in Palliative Care Utrecht, Julius Center of Health and Primary Care, UMC Utrecht, Universiteitsweg 100, Utrecht, 3584 CG, the Netherlands.
L C M KremerPrincess Maxima Centre for Pediatric Oncology, Heidelberglaaan 25, Utrecht, 3584 CS, The Netherlands.
J C van DijkUniversity of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, Groningen, 9713 GZ, The Netherlands.
A M HabingUniversity of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, Groningen, 9713 GZ, The Netherlands.
A M TijsUniversity of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, Groningen, 9713 GZ, The Netherlands.
A A TrampeUniversity of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, Groningen, 9713 GZ, The Netherlands.
A A E VerhagenUniversity of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, Groningen, 9713 GZ, The Netherlands.
J L Aris-MeijerUniversity of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, Groningen, 9713 GZ, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundTo ensure high-quality pediatric palliative care (PPC) and enable healthcare professionals (HCPs) to provide person-centered care for the individual child with a life-limiting or life-threatening illness and their family, the Individual Care Plan (ICP) for PPC was developed. However, in practice, the ICP for PPC is not used for all children in need of PPC. Insight into why, for which problem and for which children HCPs wish to use an ICP in PPC is therefore necessary to assure that the ICP can be fully implemented in practice.

methodsTwo semi-structured focus group interviews were held with 15 experienced healthcare professionals in PPC. Data were thematically analyzed.

resultsParticipants wish to use an ICP to collaboratively establish a plan with parents for the current and future care and treatment of the child. By doing so, they hope to achieve coordination and continuity of care, to achieve shared decision-making, and to support parents and other healthcare professionals in the care of the child. Participants think the ICP could also be used in the care for children with complex chronic conditions.

conclusionThe purposes for which healthcare professionals wish to use an ICP in PPC are broader than the purpose for which the ICP for PPC was developed. Future research should focus on whether the use of an ICP in PPC practice can achieve these purposes.

Indexed as

Focus GroupsHealth PersonnelPalliative CarePediatricsQualitative ResearchAdultChildFemaleHumansMaleMiddle AgedPatient Care PlanningIndividual care planPediatric palliative careShared decision-making

Identifiers

PMID39367385
PMCPMC11452972

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.