Evidence map›Paper›PMID 39361314›Full record

ArticleTranslational vision science & technology2024

Data Harmonization, Standardization, and Collaboration for Diabetic Retinal Disease (DRD) Research: Report From the 2024 Mary Tyler Moore Vision Initiative Workshop on Data.

Amitha Domalpally, Ward Fickweiler, S Robert Levine, Kerry E Goetz, Brian L VanderBeek, Aaron Lee, Jeffrey M Sundstrom, Dorene Markel, Jennifer K Sun

Abstract read
In one paragraph

Article in Translational vision science & technology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Amitha DomalpallyWisconsin Reading Center, University of Wisconsin, Madison, WI, USA.
Ward FickweilerDepartment of Ophthalmology, Harvard Medical School, Boston, MA, USA.
S Robert LevineMary Tyler Moore Vision Initiative, Greenwich, CT, USA.
Kerry E GoetzOffice of Data Science and Health Informatics, National Eye Institute, National Institutes of Health, Bethesda, MD, USA.
Brian L VanderBeekScheie Eye Institute, Department of Ophthalmology, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, USA.
Aaron LeeDepartment of Ophthalmology, University of Washington, Seattle, WA, USA.
Jeffrey M SundstromDepartment of Ophthalmology, Penn State College of Medicine, Hershey, PA, USA.
Dorene MarkelMary Tyler Moore Vision Initiative, Greenwich, CT, USA.
Jennifer K SunDepartment of Ophthalmology, Harvard Medical School, Boston, MA, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The 2024 Mary Tyler Moore Vision Initiative (MTM Vision) Workshop on Data convened to discuss best practices and specific considerations for building a comprehensive, shareable MTM Vision data lake. The workshop aimed to accelerate the development of new indications, therapies, and regulatory pathways for diabetic retinal disease (DRD) by standardizing and harmonizing clinical data and ocular 'omics analyses. Standardization of data collection, the use of common data elements, and data interoperability were emphasized, alongside federated learning approaches to promote data sharing and collaboration while maintaining data privacy and security. The integration of molecular data with other multimodal data types was recognized as a promising strategy for leveraging machine learning and AI approaches to advancing therapeutics development and improving treatment outcomes for DRD patients. Partnerships with entities such as the National Eye Institute, part of the National Institutes of Health, foundations, and industry were deemed vital for the successful implementation of these initiatives.

Indexed as

Diabetic RetinopathyBiomedical ResearchHumansInformation DisseminationUnited States

Identifiers

PMID39361314
PMCPMC11451832

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.