Evidence map›Paper›PMID 39352737›Full record

ArticleJMIR pediatrics and parenting2024

Development of MyREADY Transition BBD Mobile App, a Health Intervention Technology Platform, to Improve Care Transition for Youth With Brain-Based Disabilities: User-Centered Design Approach.

Ariane Marelli, Ronen Rozenblum, Clara Bolster-Foucault, Alicia Via-Dufresne Ley, Noemie Maynard, Khush Amaria, Barb Galuppi, Sonya Strohm, Linda Nguyen, Claire Dawe-McCord and 3 more

Registry-linked trialAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in JMIR pediatrics and parenting, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03852550 (CHILD-BRIGHT READYorNot[TM] Brain-Based Disabilities Trial), which is not on this map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03852550 naterminatednot on this map

CHILD-BRIGHT READYorNot[TM] Brain-Based Disabilities Trial

TypeinterventionalSponsorMcMaster UniversityRan2020 to 2023Enrolled52ConditionsAutism Spectrum Disorder, Cerebral Palsy, Epilepsy, Fetal Alcohol Spectrum DisordersArmse-health application
3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Ariane MarelliMcGill Adult Unit for Congenital Heart Disease Excellence, McGill University Health Centre, Montreal, QC, Canada.ORCID https://orcid.org/0000-0002-1784-8206
Ronen RozenblumBrigham and Women's Hospital and Harvard Medical School, Boston, MA, United States.ORCID https://orcid.org/0000-0002-8503-5864
Clara Bolster-FoucaultDepartment of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, QC, Canada.ORCID https://orcid.org/0000-0003-1759-766X
Alicia Via-Dufresne LeyCardiovascular Health Across the Lifespan Program, Research Institute of the McGill University Health Centre, Montreal, QC, Canada.ORCID https://orcid.org/0009-0004-3958-0118
Noemie MaynardDepartment of Medicine, McGill University, Montreal, QC, Canada.ORCID https://orcid.org/0009-0000-4042-7031
Khush AmariaDepartment of Psychology, Division of Adolescent Medicine, The Hospital for Sick Children, Toronto, ON, Canada.ORCID https://orcid.org/0000-0003-0339-6525
Barb GaluppiDepartment of Pediatrics, McMaster University, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0003-2591-6755
Sonya StrohmDepartment of Pediatrics, McMaster University, Hamilton, ON, Canada.ORCID https://orcid.org/0009-0007-6929-2178
Linda NguyenCanChild Centre for Childhood Disability Research, School of Rehabilitation Science, McMaster University, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0002-7165-6678
Claire Dawe-McCordCumming School of Medicine, University of Calgary, Calgary, AB, Canada.ORCID https://orcid.org/0000-0002-7949-6082
Connie PuttermanCentre for Addition and Mental Health, McMaster University, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0002-3587-9137
Adrienne H KovacsEquilibria Psychological Health, Toronto, ON, Canada.ORCID https://orcid.org/0000-0002-2687-0384
Jan Willem GorterDepartment of Pediatrics, McMaster University, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0002-3012-2119

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundTransition from pediatric to adult health care varies and is resource intensive. Patient-centered health information technology (HIT) interventions are increasingly being developed in partnership with patients.

objectiveThis study aims to develop an internet-based mobile app intervention for patients with brain-based disabilities to improve transition in care readiness.

methodsThe app was designed for patients aged 15 to 17 years with brain-based disabilities having the ability to use a mobile app. A multidisciplinary team, an industry partner, and a patient and family advisory council was assembled. We hypothesized that existing tools could be migrated into the app to address education, empowerment, and navigation. We used cognitive learning theory to support chapters targeting transition in care skill sets. We used the agile iterative methodology to engage stakeholders.

resultsWe developed a novel MyREADY Transition HIT platform. An electronic mentor supported cognitive learning with messaging, quizzes, rewards, and videos. We used gaming to guide navigation through a fictitious health care city. Adapting existing tools was achieved by the patient and family advisory council requesting personalization. Our iterative design required time-consuming back-end technology management. Developing the platform took 24 months instead of our grant-approved 12 months, impacting the onset of the planned trial within the allotted budget.

conclusionsA novel patient-centered HIT platform to improve health care transition was successfully developed in partnership with patients and industry. Careful resource management was needed to achieve timely delivery of the end product, flagging the cautious planning required to deliver HIT tools in time for the much-needed trials informing their clinical application.

trial registrationClinicalTrials.gov NCT03852550; https://clinicaltrials.gov/study/NCT03852550.

Indexed as

health care transitionhealth ITmobile appmobile phonepatient-centered carepatient engagement

Identifiers

PMID39352737
PMCPMC11480690

What OpenQuestion holds

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LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.