Evidence map›Paper›PMID 39351824›Full record

ArticleInternal medicine journal2024

How doctors can lead the way in their communities: Co-creation, the Indian community and organ donation registration.

Gail Moloney, Dhaval Ghelani, Ramanathan Lakshmanan, Leah Upcroft, Marie Hutchinson, Maddison Norton, Michael Sutherland, Iain Walker, Suzanne Rienks

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Internal medicine journal, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Gail MoloneySouthern Cross University, Coffs Harbour, New South Wales, Australia.ORCID 0000-0002-3022-9637
Dhaval GhelaniShrimad Rajchandra Mission Dharampur Australia, Sydney, New South Wales, Australia.
Ramanathan LakshmananOrgan and Tissue Donation Service, Liverpool Hospital, South Western Sydney Local Health District, Sydney, New South Wales, Australia.
Leah UpcroftSouth Eastern Sydney Local Health District, Sydney, New South Wales, Australia.
Marie HutchinsonSouthern Cross University, Coffs Harbour, New South Wales, Australia.ORCID 0000-0003-0025-2681
Maddison NortonSouthern Cross University, Coffs Harbour, New South Wales, Australia.ORCID 0000-0001-6521-4366
Michael SutherlandNSW Organ and Tissue Donation Network, Coffs Harbour Health Campus, Mid North Coast Local Health District, New South Wales, Australia.
Iain WalkerUniversity of Melbourne, Melbourne, Victoria, Australia.ORCID 0000-0002-1020-5873
Suzanne RienksSouthern Cross University, Coffs Harbour, New South Wales, Australia.ORCID 0000-0002-8224-3174

Funding

Australian Organ and Tissue Authority
6 · The paper itself

Abstract

BACKGROUND AND

aimsTransplant success rates can increase when organs and tissues are matched within ethnic communities, but how well are the processes around organ donation understood by discrete ethnic communities in Australia? We investigated this in relation to one ethnic group, the Australian-Indian community in Sydney.

methodsA culturally appropriate survey and dissemination strategy was co-created with Indian community members through an Advisory Panel. Items were informed by a thematic analysis of cultural beliefs shared through the advisory panel discussions and measured awareness and practices associated with organ donation and transplantation and beliefs about organ donation and registration. Donation information was provided at the end.

resultsTwo hundred and thirty-eight participants completed the survey. Hinduism along with Tamil and Gujarati were the most frequently identified religious and cultural backgrounds. The processes around organ donation were not well known, and Australian Organ Donor Register registration rates were below the national average. Principal component analysis revealed positive, social, medical trust, concerns, and cardiac and brain death belief factors. Doctors played a key role in generating trust in the donation system, decisions about organ donation were embedded in family and community, and family discussion was related to increased registration. Registered participants reported higher scores on medical trust beliefs, which also predicted family discussion.

conclusionThe information needed to understand the process of organ donation and registration in Australia is not embedded in this community, highlighting the need for programmes to be tailored to each culturally diverse community rather than culturally diverse communites in general. Doctors and the advisory panels are pivotal in this process.

Indexed as

Tissue and Organ ProcurementAdolescentAdultAgedAustraliaFemaleHealth Knowledge, Attitudes, PracticeHumansIndiaMaleMiddle AgedPhysiciansRegistriesSurveys and QuestionnairesTissue DonorsYoung AdultAustralian Organ Donor Registerbeliefsco‐creationIndian communityorgan donationregistration

Identifiers

PMID39351824
PMCPMC11610646

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.