Evidence map›Paper›PMID 39342196›Full record

Observational studyBMC geriatrics2024

Caregivers' burden of care during emergency department care transitions among older adults: a mixed methods cohort study.

Nathalie Germain, Estephanie Jémus-Gonzalez, Vanessa Couture, Émilie Côté, Michèle Morin, Annie Toulouse-Fournier, Laetitia Bert, Raphaëlle Giguère, Samir Sinha, Nadia Sourial and 10 more

Abstract readObservational Study
In one paragraph

Observational study in BMC geriatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors.

Nathalie GermainCentre de Recherche Intégrée Pour Un Système Apprenant en Santé Et Services Sociaux, Centre Intégré de Santé Et Services Sociaux de Chaudière-Appalaches, Lévis, Québec, Canada. nathalie.germain.5@ulaval.ca.
Estephanie Jémus-GonzalezFaculty of Medicine, Université Laval, Québec, Québec, Canada.
Vanessa CoutureCentre de Recherche Intégrée Pour Un Système Apprenant en Santé Et Services Sociaux, Centre Intégré de Santé Et Services Sociaux de Chaudière-Appalaches, Lévis, Québec, Canada.
Émilie CôtéCentre de Recherche Intégrée Pour Un Système Apprenant en Santé Et Services Sociaux, Centre Intégré de Santé Et Services Sociaux de Chaudière-Appalaches, Lévis, Québec, Canada.
Michèle MorinCentre de Recherche Intégrée Pour Un Système Apprenant en Santé Et Services Sociaux, Centre Intégré de Santé Et Services Sociaux de Chaudière-Appalaches, Lévis, Québec, Canada.
Annie Toulouse-FournierCentre de Recherche Intégrée Pour Un Système Apprenant en Santé Et Services Sociaux, Centre Intégré de Santé Et Services Sociaux de Chaudière-Appalaches, Lévis, Québec, Canada.
Laetitia BertCentre de Recherche Intégrée Pour Un Système Apprenant en Santé Et Services Sociaux, Centre Intégré de Santé Et Services Sociaux de Chaudière-Appalaches, Lévis, Québec, Canada.
Raphaëlle GiguèreCentre de Recherche Intégrée Pour Un Système Apprenant en Santé Et Services Sociaux, Centre Intégré de Santé Et Services Sociaux de Chaudière-Appalaches, Lévis, Québec, Canada.
Samir SinhaDepartment of Family and Community Medicine, University of Toronto, Toronto, ON, Canada.
Nadia SourialDepartment of Health Management, Evaluation and Policy, School of Public Health, Université de Montréal, Montréal, Québec, Canada.
Lucas B ChartierDepartment of Emergency Medicine, University Health Network, Toronto, ON, Canada.
Holly O WittemanFaculty of Medicine, Université Laval, Québec, Québec, Canada.
France LégaréFaculty of Medicine, Université Laval, Québec, Québec, Canada.
Rawane SambCentre de Recherche Intégrée Pour Un Système Apprenant en Santé Et Services Sociaux, Centre Intégré de Santé Et Services Sociaux de Chaudière-Appalaches, Lévis, Québec, Canada.
Stéphane TurcotteCentre de Recherche Intégrée Pour Un Système Apprenant en Santé Et Services Sociaux, Centre Intégré de Santé Et Services Sociaux de Chaudière-Appalaches, Lévis, Québec, Canada.
Sam ChandavongCentre de Recherche Intégrée Pour Un Système Apprenant en Santé Et Services Sociaux, Centre Intégré de Santé Et Services Sociaux de Chaudière-Appalaches, Lévis, Québec, Canada.
Lyna AbrouguiCentre de Recherche Intégrée Pour Un Système Apprenant en Santé Et Services Sociaux, Centre Intégré de Santé Et Services Sociaux de Chaudière-Appalaches, Lévis, Québec, Canada.
Joanie RobitailleCentre de Recherche Intégrée Pour Un Système Apprenant en Santé Et Services Sociaux, Centre Intégré de Santé Et Services Sociaux de Chaudière-Appalaches, Lévis, Québec, Canada.
Patrick M ArchambaultCentre de Recherche Intégrée Pour Un Système Apprenant en Santé Et Services Sociaux, Centre Intégré de Santé Et Services Sociaux de Chaudière-Appalaches, Lévis, Québec, Canada.
Network of Canadian Emergency Researchers

Funding

Canadian Institutes for Health Research 201603Fonds de recherche du Québec - Santé 283211Master's Award: Canada Graduate Scholarships Award 202112
6 · The paper itself

Abstract

objectiveImproving care transitions for older adults can reduce emergency department (ED) revisits, and the strain placed upon caregivers. We analyzed whether caregivers felt a change in burden following a care transition, and what may be improved to reduce it.

methodsThis mixed-methods observational study nested within LEARNING WISDOM included caregivers of older patients who experienced an ED care transition. Burden was collected with the brief Zarit Burden Interview (ZBI-12), and caregivers also commented on the care transition. A qualitative coding scheme of patient care transitions was created to reflect themes important to caregivers. Comments were randomly analyzed until saturation and themes were extracted from the data. We followed both the SRQR and STROBE checklists.

resultsComments from 581 caregivers (mean age (SD) 64.5 (12.3), 68% women) caring for patients (mean age (SD) 77.2 (7.54), 48% women) were analyzed. Caregivers overwhelmingly reported dissatisfaction and unmet service expectations, particularly with home care and domestic help. Communication and follow-up from the ED emerged as an area for improvement. Caregivers who reported an increased level of burden following a patient's care transition had significantly higher ZBI scores than caregivers who self-reported stable burden levels.

conclusionCaregivers with increasing, stable, and improved levels of subjective burden all reported areas for improvement in the care transition process. Themes centering on the capacity to live at home and inadequate communication were most frequently mentioned and may represent serious challenges to caregivers. Addressing these challenges could improve both caregiver burden and ED care transitions.

Indexed as

CaregiversEmergency Service, HospitalAgedAged, 80 and overCaregiver BurdenCohort StudiesFemaleHumansMaleMiddle AgedPatient TransferCaregiver perceptionsCaregivingCare transitionsEmergency careOlder adult patients

Identifiers

PMID39342196
PMCPMC11438161

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.