Evidence map›Paper›PMID 39341070›Full record

ArticleThe International journal on drug policy2024

Beyond the 5-year recovery mark: Perspectives of researchers with lived and living experience on public engagement and discourse.

Camille C Cioffi, Ryan E Flinn, Emily Pasman, Kim Gannon, Dudi Gold, Sean Esteban McCabe, Wayne Kepner, Martha Tillson, Jason B Colditz, Douglas C Smith and 6 more

Abstract read
In one paragraph

Article in The International journal on drug policy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Frontiers in public health · 2026
    Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Camille C CioffiUniversity of Oregon, Oregon Research Institute, & Influents Innovations, USA. Electronic address: ccioffi@uoregon.edu.
Ryan E FlinnCollege of Education & Human Development, University of North Dakota, USA. Electronic address: ryan.flinn@und.edu.
Emily PasmanUniversity of Michigan, Center for the Study of Drugs, Alcohol, Smoking, and Health, USA. Electronic address: pasman@med.umich.edu.
Kim GannonYale School of Public Health, USA. Electronic address: kim.gannon@yale.edu.
Dudi GoldCriminologist, Bar-Ilan University, Israel. Electronic address: dudi@goldcenter.org.il.
Sean Esteban McCabeUniversity of Michigan, Center for the Study of Drugs, Alcohol, Smoking, and Health, USA. Electronic address: plius@med.umich.edu.
Wayne KepnerUniversity of California San Diego School of Medicine, USA. Electronic address: wkepner@health.ucsd.edu.
Martha TillsonUniversity of Kentucky, USA. Electronic address: martha.tillson@uky.edu.
Jason B ColditzUniversity of Pittsburgh, USA. Electronic address: colditzjb@pitt.edu.
Douglas C SmithUniversity of Illinois Urbana-Champaign, USA. Electronic address: smithdc@illinois.edu.
Robert M BohlerJiann-Ping Hsu College of Public Health at Georgia Southern University, USA. Electronic address: rbohler@georgiasouthern.edu.
Joseph E O'DonnellUniversity of Pennsylvania, USA. Electronic address: josepheodonnell@gmail.com.
Christi HildebranComagine Health, USA. Electronic address: childebran@comagine.org.
Barrett Wallace MontgomeryRTI International, USA. Electronic address: bmontgomery@rti.org.
Sarah ClinganUniversity of California, Los Angeles, USA. Electronic address: sarahclingan1@gmail.com.
Ryan J LofaroDepartment of Public and Nonprofit Studies, Georgia Southern University, USA. Electronic address: rlofaro@georgiasouthern.edu.

Funding

Supplement to Prevention Research Center: Parenting Among Women Who Are Opioid Users, Project 2P50DA048756 · NIDA · UNIVERSITY OF OREGON · PI STORMSHAK, ELIZABETH A · 2019 to 2023
$18.0M
Interdisciplinary Research Training in Pain and Substance Use DisordersT32DA035165 · NIDA · STANFORD UNIVERSITY · PI SEAN C MACKEY · 2013 to 2026
$7.2M
Trajectories of Prescription Nonmedical Drug MisuseR01DA031160 · NIDA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI SEAN ESTEBAN MCCABE · 2011 to 2026
$3.7M
Diversity Supplement: Building a Lasting Foundation to Advance Actionable Research on Recovery Support Services for High Risk Individuals with Opioid Use Disorder: The Initiative for JEAPR24DA051950 · NIDA · OREGON SOCIAL LEARNING CENTER, INC. · PI MCCART, MICHAEL R, SHEIDOW, ASHLI J · 2020 to 2025
$2.8M
A Patient Engagement Resource Center using Community-Based Participatory Action Research to Support Parents with Substance Use DisordersR24DA061209 · NIDA · UNIVERSITY OF OREGON · PI Camille C Cioffi, Leslie Diane Leve · 2024 to 2026
$1.4M
Toward measures and behavioral trials for effective online AUD recovery supportK01AA030809 · NIAAA · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI Jason Colditz · 2023 to 2026
$683k
NIAAA NIH HHS K01 AA030809NIDA NIH HHS P50 DA048756NIDA NIH HHS R01 DA031160NIDA NIH HHS R24 DA051950NIDA NIH HHS R24 DA061209NIDA NIH HHS T32 DA035165NIH HHS T32 GR103237
6 · The paper itself

Abstract

There has been growing attention toward including people with lived and living experience (PWLLE) with substance use, substance use disorders, and recovery in public-facing activities. The goals of including PWLLE in sharing their perspectives often include demonstrating that recovery is possible, destigmatizing and humanizing people who have substance use experiences, and leveraging their lived experience to illuminate a particular topic or issue. Recently, the National Council for Mental Wellbeing issued a set of guidelines entitled, "Protecting Individuals with Lived Experience in Public Disclosure," which included a "Lived Experience Safeguard Scale." We offer the present commentary to bolster some of the ideas presented by the Council and to articulate suggested changes to this guidance, with the goal of reducing unintentional gatekeeping and stigma. Specifically, we offer that there are numerous problems with the recommendation to only invite people who have "five or more years of sustained recovery" to contribute to public discourse. The idea of perceived stability after five years of abstinence is not new to us or the field. We suggest that this idea excludes people who have experienced the present rapidly changing substance use landscape, people who have briefly returned to use, some young people, and people with living experience who also can valuably contribute to public discourse. We offer alternative guidelines to the National Council for Mental Wellbeing and others seeking to promote practices that are inclusive to the diversity of PWLLE.

Indexed as

Substance-Related DisordersHumansResearch PersonnelSocial StigmaTime FactorsLived experiencePublic discourse

Identifiers

PMID39341070
PMCPMC11540719

What OpenQuestion holds

Textmetadata
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Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.