ArticleBMC palliative care2024
Experiences of family caregivers of patients with end-of-life cancer during the transition from hospital to home palliative care: a qualitative study.
Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
What it found
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Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Family Experiences, Needs, and Perceptions in Home-Based Hospice Care for Patients With Terminal Cancer: Meta-Synthesis and Systematic Review.JMIR cancer · 2025Pooled it
- Effect of grief counseling on psychological distress and negative emotions among family members of patients with terminal tumors.World journal of psychiatry · 2025Trial
- Balancing hope and uncertainty: family perspectives on lung transplantation in cystic fibrosis - a qualitative study.International journal of qualitative studies on health and well-being · 2026Article
- Family Caregiving and Psychosocial Support in Hospice and Palliative Care: A Social Work Perspective.Journal of hospice and palliative care · 2026Article
- Family Caregivers' Understanding, Expectations, and Emotional Responses During Transition to a Palliative Care Unit: A Qualitative Study.Nursing open · 2026Article
- Evolution of Clinical Fragility and Medication Burden in Children with Medical Complexity: A Longitudinal Cohort Study.Children (Basel, Switzerland) · 2026Article
- Lonely boats swaying in the storm: experiences and supportive needs of adult only-children confronting parental end-of-life care: a qualitative study.BMC palliative care · 2026Article
- Caregiver guilt as an underrecognised burden in family cancer caregiving: a scoping review and implications for palliative care support.BMC palliative care · 2026Article
- The family caregiver experience in palliative care pathways: a multidimensional framework.BMC health services research · 2026Article
- Article
- Care competency scale for family caregivers in home palliative care: Turkish adaptation, validity, and reliability study.BMC palliative care · 2026Article
- Standing next to but not being part of: relatives' experiences of support from healthcare professionals when general palliative care is provided at home.BMC palliative care · 2026Article
- The burden and needs of primary caregivers in home-based palliative care: a qualitative study based on social-ecological systems theory.BMC palliative care · 2026Article
- Experiences of bereaved family caregivers of patients with Alzheimer's disease regarding do-not-resuscitate orders: A qualitative study.Palliative & supportive care · 2026Article
- The relationship between uncertainty in illness and caregiving capacity in primary caregivers of patients with first-time ischemic stroke: the roles of psychological adaptation and perceived social support.Frontiers in psychology · 2026Article
- Identifying the factors contributing to hospital readmissions in palliative care: a mixed-methods study from a Turkish palliative care unit.BMC palliative care · 2025Article
- Feasibility, acceptability and potential efficacy of the pediatric family-based dignity therapy for children with advanced cancer: A pilot study.Asia-Pacific journal of oncology nursing · 2025Article
- Family perceptions of the transition from hospital to home palliative care: a phenomenological study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Integrating a traditional Chinese medicine hospice care system to address depression, anxiety, and sleep disorders in advanced cancer.World journal of psychiatry · 2025Article
- The End-of-Life Experiences of Cancer Patients' Families in a Tertiary Hospital Providing Palliative Care Consultation During the COVID-19 Pandemic.Journal of hospice and palliative care · 2025Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe transition of family caregivers of patients with end-of-Life cancer receiving palliative care from hospital to home is a complex and challenging process. This phase of care involves not only the physical and psychological health of the patient but also the role adaptation and emotional support of the family caregivers. To gain a deeper understanding of the various experiences and feelings during this process, we conducted a qualitative study.
methodsThis study employed a descriptive phenomenological research method. The interviews focused on the specific experiences, challenges faced, support received, and coping strategies of family caregivers of patients with end-of-life cancer during the transition from hospital to home palliative care. All data were treated with strict confidentiality, and recordings and transcriptions were made with the participants' consent.
resultsA total of 15 family caregivers participated. Four main themes and nine sub-themes were identified: complex transition process (anxiety about uncertainty, resistance to transition), discontinuity in care (insufficient discharge guidance, lack of continuous communication mechanisms), post-discharge continuous care needs (need for home care knowledge and skills, social and emotional support, grief counselling and death education), and personal growth and gains (enhanced coping ability, increased psychological resilience).
conclusionFamily caregivers face numerous emotional, cognitive, practical, and social support challenges during the transition from hospital to home care. To improve the caregiving experience and quality of life, appropriate training and support should be provided to better meet the caregivers' needs.
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