Illness representation in patients with multiple sclerosis: A preliminary narrative medicine study.

T Paolucci, M Reho, C Ciacchella, G Veneziani, I Santoro, G Fiorentino, F Galli, C Lai

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Article in Multiple sclerosis journal - experimental, translational and clinical. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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8 authors.

T PaolucciDepartment of Medical, Oral and Biotechnological Sciences (DSMOB), Physical Medicine and Rehabilitation, G. D'Annunzio University of Chieti-Pescara, Chieti, Italy.

M RehoDepartment of Dynamic, Clinical Psychology and Health Studies, Sapienza University of Rome, Rome, Italy.ORCID https://orcid.org/0000-0001-9495-171X

C CiacchellaDepartment of Dynamic, Clinical Psychology and Health Studies, Sapienza University of Rome, Rome, Italy.

G VenezianiDepartment of Dynamic, Clinical Psychology and Health Studies, Sapienza University of Rome, Rome, Italy.

I SantoroDepartment of Medical, Oral and Biotechnological Sciences (DSMOB), Physical Medicine and Rehabilitation, G. D'Annunzio University of Chieti-Pescara, Chieti, Italy.

G FiorentinoDepartment of Dynamic, Clinical Psychology and Health Studies, Sapienza University of Rome, Rome, Italy.

F GalliDepartment of Dynamic, Clinical Psychology and Health Studies, Sapienza University of Rome, Rome, Italy.

C LaiDepartment of Dynamic, Clinical Psychology and Health Studies, Sapienza University of Rome, Rome, Italy.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: The development of personalized interventions aimed at coping with multiple sclerosis is enriched by the understanding of patients' representations of the illness. Objective: The aim of this study was to investigate the association between patients' illness representations versus contextual factors (i.e. presence/absence and type of caregiver, engagement, frequency and type of rehabilitation), fatigue, pain, and neurological impairment. Methods: Interviews of 28 patients were analysed through an automated text analysis procedure. After a systematic labelling procedure four illness representations were identified: Results: Findings showed that the representation of the relational aspects of the illness was associated with the caregiver's presence, while the representation related to coping and growth tended to be associated with participation in rehabilitation programs. Moreover, the representation related to daily life was associated with lower levels of fatigue compared to the representation related to coping and growth, and with higher levels of neurological impairment compared to the representations related to coping and growth and the relational aspects of the illness. Conclusion: Exploring illness representations is a key step that can help health professionals to get an integrated perspective that could be useful in designing and calibrating interventions according to specific patient needs.

Indexed as

caregiverfatigueMultiple sclerosisneurological impairmentpainrehabilitationrepresentations

Identifiers

PMID39329093

DOI10.1177/20552173241271755

PMCPMC11425788

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