Evidence map›Paper›PMID 39327878›Full record

ArticlePalliative & supportive care2024

"We don't do any of these things because we are a death-denying culture": Sociocultural perspectives of Black and Latinx cancer caregivers.

Candidus Nwakasi, Darlingtina Esiaka, Chizobam Nweke, Runcie C W Chidebe, Wilson Villamar, Kate de Medeiros

Abstract read
In one paragraph

Article in Palliative & supportive care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Exploring the understanding and management of anxiety from cancer in Latino/a older adults and their caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  2. "Don't be a hero, don't keep it a secret": understanding the lived experience of Chinese American patients with cancer through their expressive writing entries.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  3. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

6 authors.

Candidus NwakasiDepartment of Human Development and Family Sciences, University of Connecticut, Storrs, CT, USA.ORCID 0000-0001-5727-1694
Darlingtina EsiakaDepartment of Behavioral Science and Center for Health Equity Transformation (CHET), The University of Kentucky College of Medicine, Lexington, KY, USA.
Chizobam NwekeDepartment of Human Development and Family Sciences, University of Connecticut, Storrs, CT, USA.
Runcie C W ChidebeDepartment of Gerontology and Sociology, Miami University Oxford, OH, USA.
Wilson VillamarRoger Williams Medical Center, Providence, RI, USA.
Kate de MedeirosDepartment of Human Development and Family Sciences, University of Connecticut, Storrs, CT, USA.

Funding

Training CoreP20GM103430 · NIGMS · UNIVERSITY OF RHODE ISLAND · PI Christopher Lee Hemme · 2012 to 2026
$63.6M
NIGMS NIH HHS P20 GM103430
6 · The paper itself

Abstract

objectivesCancer is an enormous public health burden among Black and Latinx cancer survivors, and they are at risk of facing barriers to accessing cancer treatment and support in the United States. This study explored the unique challenges and experiences faced by Black and Latinx cancer survivors through the lens of their caregivers, including the specific cultural, social, and systemic factors that influence cancer survivorship experience and quality of life within these communities in the United States.

methodsWe used a qualitative descriptive design for the study, and conducted 6 focus group discussions (3 Latinx and 3 Black groups) with a total of 33 caregivers of cancer survivors, (Mean age = 63 years). Data were analyzed using inductive content analysis.

resultsWe identified 3 main themes: (1) families as (un)stressors in survivorship such as the vitality of social connections and families as unintended burden; (2) responses after diagnosis specifically whether to conceal or accept a diagnosis, and (3) experiencing health care barriers including communication gaps, biased prioritizing of care, and issues of power, trust, and need for stewardship. SIGNIFICANCE OF

resultsThe findings align with previous research, highlighting the complex interplay between cultural, familial, and healthcare factors in cancer survivorship experiences within underserved communities. The study reiterates the need for culturally tailored emotional, physical, financial, and informational support for survivors and their caregivers. Also, to improve quality of life, the study highlights a need to strengthen mental health and coping strategies, to help address psychological distress and improve resilience among survivors and their caregivers.

Indexed as

Black or African AmericanCaregiversHispanic or LatinoNeoplasmsAdultAgedFemaleFocus GroupsHumansMaleMiddle AgedQualitative ResearchQuality of LifeUnited Statescancer caregivingcancer health equitycare stewardshipculture and cancer healthMinoritized cancer survivors

Identifiers

PMID39327878
PMCPMC11946925

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.