Evidence map›Paper›PMID 39325284›Full record

ArticleJournal of autism and developmental disorders2024

Analyzing Community-Based Support Requests Made by Black Families Raising Autistic Children.

Jamie N Pearson, DeVoshia L Mason Martin, Jared H Stewart-Ginsburg, Kayla M Malone, Lonnie D Manns, Janelle A Johnson, Jennifer Macko, Amelia Q Rivera, Jetta Lewis, Keshia Green and 1 more

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Article in Journal of autism and developmental disorders, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

11 authors.

Jamie N PearsonNorth Carolina State University, Campus Box 7801, Raleigh, NC, 27695, USA. jnpearso@ncsu.edu.ORCID http://orcid.org/0000-0001-6200-3790
DeVoshia L Mason MartinNorth Carolina State University, Campus Box 7801, Raleigh, NC, 27695, USA.ORCID http://orcid.org/0000-0001-6073-4792
Jared H Stewart-GinsburgNorth Carolina State University, Campus Box 7801, Raleigh, NC, 27695, USA.ORCID http://orcid.org/0000-0001-5424-7189
Kayla M MaloneUniversity of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Lonnie D MannsNorth Carolina State University, Campus Box 7801, Raleigh, NC, 27695, USA.
Janelle A JohnsonNorth Carolina State University, Campus Box 7801, Raleigh, NC, 27695, USA.
Jennifer MackoNorth Carolina State University, Campus Box 7801, Raleigh, NC, 27695, USA.
Amelia Q RiveraNorth Carolina State University, Campus Box 7801, Raleigh, NC, 27695, USA.
Jetta LewisNorth Carolina State University, Campus Box 7801, Raleigh, NC, 27695, USA.
Keshia GreenUniversity of Northern Colorado, Greeley, CO, USA.
Amela MineraliNorth Carolina State University, Campus Box 7801, Raleigh, NC, 27695, USA.

Funding

U.S. Department of Education R324B210003
6 · The paper itself

Abstract

purposeBlack families experience additional barriers to accessing autism-related supports compared to White families. Community organizations can help mitigate the negative impact of systemic inequities and lack of support that Black caregivers of autistic family members experience. Little is known about the types of support Black families seek from these organizations. Therefore, the purpose of this study was to explore the support needs of Black families raising autistic children as evidenced by communication patterns in a community-based statewide autism organization. Our research questions were: (1) What are the autism-related support needs of Black families raising autistic children; and (2) How do familial demographics influence these support needs?

methodsWe explored the support needs of Black caregivers of autistic family members by analyzing a subset of 1,460 entries (16.8% of the total communication entries) within a database of communication entries from a community-based autism organization in one southeastern state in the United States. We analyzed the frequency of support request types and the relationships between support requests and familial demographics (i.e., rurality, gender, age).

resultsWe found that Black families most often requested family or individual support, school-related support, and behavioral support. Families requested support with bullying, social services, and health insurance less often. We found significant interactions between the three most requested services and the rurality, gender, and age of the autistic family member.

conclusionWe conclude with suggestions for autism support organizations seeking to better meet the needs of Black families.

Identifiers

PMID39325284

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.