Evidence map›Paper›PMID 39320562›Full record

ArticleJournal of community genetics2024

What do women want to see in a personalized breast cancer risk report? A qualitative study of Asian women of two countries.

Fatma Aldila, Fiona Ng Fj, Jessica Audrienna, Lynn Lim Sj, Shannon Tang, Sabrina Gabriel Tanu, Eric Aria Fernandez, Faustina Audrey Agatha, Marco Wijaya, Stevany Tiurma Br Sormin and 6 more

Abstract read
In one paragraph

Article in Journal of community genetics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Fatma Aldila *NalaGenetics Pte Ltd (NalaGenetics), Bukit merah, Singapore. clinicalstudies@nalagenetics.com.
Fiona Ng Fj *NalaGenetics Pte Ltd (NalaGenetics), Bukit merah, Singapore.
Jessica AudriennaNalaGenetics Pte Ltd (NalaGenetics), Bukit merah, Singapore.
Lynn Lim SjNalaGenetics Pte Ltd (NalaGenetics), Bukit merah, Singapore.
Shannon TangNalaGenetics Pte Ltd (NalaGenetics), Bukit merah, Singapore.
Sabrina Gabriel TanuNalaGenetics Pte Ltd (NalaGenetics), Bukit merah, Singapore.
Eric Aria FernandezNalaGenetics Pte Ltd (NalaGenetics), Bukit merah, Singapore.
Faustina Audrey Agatha *SJH Initiatives, MRCCC Siloam Hospitals Semanggi, Jakarta, Indonesia.
Marco Wijaya *SJH Initiatives, MRCCC Siloam Hospitals Semanggi, Jakarta, Indonesia.
Stevany Tiurma Br Sormin *SJH Initiatives, MRCCC Siloam Hospitals Semanggi, Jakarta, Indonesia.
Levana SaniNalaGenetics Pte Ltd (NalaGenetics), Bukit merah, Singapore.
Astrid IrwantoNalaGenetics Pte Ltd (NalaGenetics), Bukit merah, Singapore.
Samuel J HaryonoSJH Initiatives, MRCCC Siloam Hospitals Semanggi, Jakarta, Indonesia.
Jingmei LiAgency for Science, Technology and Research (A*STAR), Genome Institute of Singapore, Biopolis, Singapore.
Alexandre ChanSchool of Pharmacy & Pharmaceutical Sciences, University of California, Irvine, USA.
Mikael HartmanDepartment of Surgery, Yong Loo Lin School of Medicine, National University of Singapore and National University Health System, Queenstown, Singapore.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

A breast cancer risk assessment tool for Asian populations, incorporating Polygenic Risk Score and Gail Model algorithm, has been established and validated. However, effective methods for delivering personalized risk information remain underexplored. This study aims to identify and develop effective methods for conveying breast cancer risk information to Asian women. Through ten focus group discussions with 32 women in Indonesia and Singapore, we explored preferences for the presentation of risk information. Participants favored comprehensive reports featuring actionable steps, simplified language, non-intimidating visuals, and personalized risk reduction recommendations. Singaporean participants, more aware of breast cancer prevention, showed a lower likelihood of seeking follow-ups upon receiving low-risk results compared to Indonesians. Overall, participants found the reports useful and advocated for similar approaches in other disease assessments. Balancing content and complexity in reports is crucial, highlighting the need for improved patient understanding and engagement with healthcare providers. Future studies could explore physicians' roles in delivering personalized risk assessments for breast cancer prevention.

Indexed as

Breast CancerFocus group discussionGenetic counsellingGenetic testingPolygenic risk scorePredictive genetic testing

Identifiers

PMID39320562
PMCPMC11549266

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.