Evidence map›Paper›PMID 39318369›Full record

ArticlePatient preference and adherence2024

Living with and Caring for People with Multiple Food Allergies: A Qualitative Study.

Christina Ciaccio, Jessica Dunne, Andrea Bever, Karissa Johnston, Stacey Kowal, Arpamas Seetasith, Andrew Lloyd, Alexis Mickle

Abstract read
In one paragraph

Article in Patient preference and adherence, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed.

  1. Confronting fear and uncertainty: adults' experiences of undergoing a food challenge test for food allergy.International journal of qualitative studies on health and well-being · 2026
    Article
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  3. Review
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  10. Food allergy-related bullying in children: Prevalence and psychosocial burden from a mixed-methods study.Pediatric allergy and immunology : official publication of the European Society of Pediatric Allergy and Immunology · 2026
    Observational
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Christina CiaccioThe University of Chicago, Chicago, IL, USA.ORCID 0000-0002-5059-0550
Jessica DunneBroadstreet Health Economics & Outcomes Research, Vancouver, British Columbia, Canada.ORCID 0009-0008-3685-7934
Andrea BeverBroadstreet Health Economics & Outcomes Research, Vancouver, British Columbia, Canada.
Karissa JohnstonBroadstreet Health Economics & Outcomes Research, Vancouver, British Columbia, Canada.
Stacey KowalGenentech, Inc., South San Francisco, CA, USA.ORCID 0000-0001-6018-6052
Arpamas SeetasithGenentech, Inc., South San Francisco, CA, USA.ORCID 0000-0003-0648-7764
Andrew LloydAcaster Lloyd Consulting Ltd, London, UK.ORCID 0000-0002-7597-6556
Alexis MickleBroadstreet Health Economics & Outcomes Research, Vancouver, British Columbia, Canada.ORCID 0009-0004-2884-1167

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Purpose: The quality of life (QoL) impact of food allergies extends beyond severe allergic reactions, as food avoidance can permeate the daily lives of individuals with food allergies and their caregivers. People with multiple food allergies may experience a greater impact on QoL than people with a single food allergy, but there is limited evidence available. The aim of the study was to provide insight into the lived experiences of adults, teenagers, children, and caregivers of children with multiple food allergies. Methods: Semi-structured interviews were conducted of people with multiple food allergies and their caregivers (n = 20) in the United States, including 10 adults, 5 teenagers, and 5 caregivers of children. Patterns in responses were explored using reflexive thematic analysis. Results: Four themes were developed by the researchers to convey the experiences of people with food allergies and QoL impact: preparedness and allergen avoidance results in a loss of spontaneity; emotional impact varies by person and for each person; participating in society involves speaking up and trusting others; and food is more than nutrition. In addition, 3 themes were identified that convey the experiences of caregivers: looking out for your child's safety is an emotional balancing act; limitations on what you can do on your own and as a family; and creating a safe and fulfilling environment can be time-consuming and costly. Conclusion: These findings highlight that people with multiple food allergies experience social limitations, stress about food safety and allergen avoidance, and restrictions on freedom. Caregiver QoL is impacted by the need to navigate social, emotional, and practical implications of caring for a child with multiple food allergies.

Indexed as

caregiversfood hypersensitivitymultiple food allergiespatientsquality of life

Identifiers

PMID39318369
PMCPMC11420886

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.