Evidence map›Paper›PMID 39315579›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2024

Exploring Consumer Experiences of Barriers and Enablers to Accessing Rehabilitation That Meets Their Needs: The Rehabilitation Choices Study, Part 2-Consumer Perspectives.

Gillian Mason, Karen Ribbons, Lucy Bailey, Adrian O'Malley, Tracy Ward, Stephen Ward, Michael Pollack, Frederick R Walker, Michael Nilsson, Nicolette Hodyl

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Gillian MasonHunter Medical Research Institute, New Lambton Heights, New South Wales, Australia.
Karen RibbonsHunter Medical Research Institute, New Lambton Heights, New South Wales, Australia.
Lucy BaileyHunter Medical Research Institute, New Lambton Heights, New South Wales, Australia.
Adrian O'MalleyHunter Medical Research Institute, New Lambton Heights, New South Wales, Australia.
Tracy WardHunter Medical Research Institute, New Lambton Heights, New South Wales, Australia.
Stephen WardHunter Medical Research Institute, New Lambton Heights, New South Wales, Australia.
Michael PollackCentre for Rehab Innovations, The University of Newcastle, Australia, Callaghan, New South Wales, Australia.
Frederick R WalkerHunter Medical Research Institute, New Lambton Heights, New South Wales, Australia.
Michael NilssonHunter Medical Research Institute, New Lambton Heights, New South Wales, Australia.
Nicolette HodylHunter Medical Research Institute, New Lambton Heights, New South Wales, Australia.

Funding

This work has been funded by the Medibank Better Health Foundation and the Priority Research Centre for Stroke and Brain Injury, University of Newcastle, NSW, Australia.
6 · The paper itself

Abstract

introductionImproved access to rehabilitation is highlighted as a key pathway to achieving the World Health Organisation's (WHO) goal of ensuring healthy lives and promoting well-being for all (Sustainable Development Goal 3). This article is the second in a two-part series outlining the findings from the Rehabilitation Choices study, which aimed to identify how health professionals and consumers in Australia are informed to make decisions about rehabilitation, and their experience with barriers and enablers to accessing that rehabilitation. In this study, we present the perspectives of consumers with different health conditions and a range of experiences with rehabilitation services.

methodsThis was a qualitative study using focus groups and semi-structured interviews. People with self-reported lived experience of rehabilitation and carers were recruited using maximum variation sampling. Thematic analysis of data was conducted using an inductive approach.

resultsFifty-six consumers with diverse lived experiences of rehabilitation (19-80 years, 49 patients, 7 carers) participated in focus groups and interviews to discuss how they sourced information about rehabilitation and their experiences of what made it hard or easy to access rehabilitative care to meet their needs. Four themes were produced from the data: (1) service-centricity of options limits access, (2) access is the patient's responsibility, (3) enabling decision-making about rehabilitation with appropriate information and (4) provision of a psychologically safe environment.

conclusionsAny planned (re)design of services to improve consumer access to rehabilitation should consider the themes identified in this study. This will ensure that consumers are provided with rehabilitation options that suit their holistic and unique needs beyond consideration of their medical diagnoses, and are actively supported to navigate this access, provided with information to help them make informed choices and provided a psychologically safe environment to engage effectively with rehabilitation. PATIENT OR PUBLIC CONTRIBUTION: Three consumer research partners with lived experience of rehabilitation as patients or carers were core team members. They were involved in the design and implementation of the recruitment and communications strategies, design of the interview approach and discussion guide, contributed to the interpretation and contextualisation of findings and writing of this manuscript and are included as co-authors (A. O., T. W. and S. W.).

Indexed as

Focus GroupsHealth Services AccessibilityInterviews as TopicQualitative ResearchAdultAgedAged, 80 and overAustraliaCaregiversFemaleHumansMaleMiddle AgedRehabilitationYoung Adultaccessibilityaccess to healthcaredecision‐makingdisabilitypeople with disabilitiesrehabilitation

Identifiers

PMID39315579
PMCPMC11420657

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.