Evidence map›Paper›PMID 39301630›Full record

ArticleJournal of the American Medical Informatics Association : JAMIA2024

Linkability measures to assess the data characteristics for record linkage.

Toan C Ong, Andrew Hill, Michael G Kahn, Lauren R Lembcke, Lisa M Schilling, Shaun J Grannis

Abstract read
In one paragraph

Article in Journal of the American Medical Informatics Association : JAMIA, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Toan C OngDepartment of Biomedical Informatics, University of Colorado Anschutz Medical Campus, Aurora, CO 80045, United States.ORCID 0000-0001-6787-1407
Andrew HillColorado School of Public Health, University of Colorado Denver, Denver, CO 80045, United States.
Michael G KahnUniversity of Colorado Anschutz Medical Campus, Aurora, CO 80045, United States.ORCID 0000-0003-4786-6875
Lauren R LembckeRegenstrief Institute, Indianapolis, IN 45202, United States.
Lisa M SchillingDivision of General Internal Medicine, University of Colorado Anschutz Medical Campus, Aurora, CO 80045, United States.
Shaun J GrannisRegenstrief Institute, Indianapolis, IN 45202, United States.ORCID 0000-0002-8093-6639

Funding

Patient-Centered Outcomes Research Institute ME-2018C1-11287
6 · The paper itself

Abstract

objectivesAccurate record linkage (RL) enables consolidation and de-duplication of data from disparate datasets, resulting in more comprehensive and complete patient data. However, conducting RL with low quality or unfit data can waste institutional resources on poor linkage results. We aim to evaluate data linkability to enhance the effectiveness of record linkage. MATERIALS AND

methodsWe describe a systematic approach using data fitness ("linkability") measures, defined as metrics that characterize the availability, discriminatory power, and distribution of potential variables for RL. We used the isolation forest algorithm to detect abnormal linkability values from 188 sites in Indiana and Colorado, and manually reviewed the data to understand the cause of anomalies.

resultWe calculated 10 linkability metrics for 11 potential linkage variables (LVs) across 188 sites for a total of 20 680 linkability metrics. Potential LVs such as first name, last name, date of birth, and sex have low missing data rates, while Social Security Number vary widely in completeness among all sites. We investigated anomalous linkability values to identify the cause of many records having identical values in certain LVs, issues with placeholder values disguising data missingness, and orphan records. DISCUSSION: The fitness of a variable for RL is determined by its availability and its discriminatory power to uniquely identify individuals. These results highlight the need for awareness of placeholder values, which inform the selection of variables and methods to optimize RL performance.

conclusionEvaluating linkability measures using the isolation forest algorithm to highlight anomalous findings can help identify fitness-for-use issues that must be addressed before initiating the RL process to ensure high-quality linkage outcomes.

Indexed as

AlgorithmsMedical Record LinkageColoradoData AccuracyElectronic Health RecordsHumansIndianadata characteristicsdistributional measuresintrinsic measureslinkabilityrecord linkage

Identifiers

PMID39301630
PMCPMC11879926

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.