Evidence map›Paper›PMID 39289662›Full record

ArticleBMC palliative care2024

Experiences and access of palliative and end of life care for older people from minority ethnic groups: a scoping review.

Narin Aker, Sarah Griffiths, Nuriye Kupeli, Rachael Frost, Pushpa Nair, Kate Walters, Lee Joshua Melo, Nathan Davies

Abstract readScoping Review
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

20 citing papers in PubMed, 2 syntheses or guidelines pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Narin AkerUCL Research Department of Primary Care and Population Health, Royal Free Campus, Rowland Hill Street, London, NW3 2PF, UK. n.aker@ucl.ac.uk.
Sarah GriffithsUCL Research Department of Primary Care and Population Health, Royal Free Campus, Rowland Hill Street, London, NW3 2PF, UK.
Nuriye KupeliUCL Marie Curie Palliative Care Research Department, London, UK.
Rachael FrostUCL Research Department of Primary Care and Population Health, Royal Free Campus, Rowland Hill Street, London, NW3 2PF, UK.
Pushpa NairUCL Research Department of Primary Care and Population Health, Royal Free Campus, Rowland Hill Street, London, NW3 2PF, UK.
Kate WaltersUCL Research Department of Primary Care and Population Health, Royal Free Campus, Rowland Hill Street, London, NW3 2PF, UK.
Lee Joshua MeloUCL Research Department of Primary Care and Population Health, Royal Free Campus, Rowland Hill Street, London, NW3 2PF, UK.
Nathan DaviesUCL Research Department of Primary Care and Population Health, Royal Free Campus, Rowland Hill Street, London, NW3 2PF, UK.

Funding

NIHR School for Primary Care Research C009
6 · The paper itself

Abstract

backgroundMany older people from minority ethnic groups experience inequalities towards the end of life, including barriers to accessing palliative care. With levels of international migration increasing, there is a need to understand these differences and consider the needs of minority ethnic groups in healthcare policies. This review aimed to map evidence on how older people from minority ethnic groups access and utilise palliative and end of life care, preferences for palliative and end of life care, experiences of palliative and end of life care, and how this varies between minority ethnic groups in different countries, and with different health conditions.

methodsScoping review, following Joanna Briggs Institute (JBI) guidance. Searches of eight online databases (MEDLINE, Embase, Web of Science, CINAHL, PsycInfo, Assia, Scopus, and the Cochrane Library) and grey literature were undertaken in 2024. Qualitative sources that focused on older people from minority ethnic groups' and carers' access to and use of palliative and end of life care were included, as well as those focusing on healthcare professionals' experiences.

resultsTwenty-three sources were included in the review, the majority of which were interview studies from the USA. Findings reflect a range of preferences, inequalities, facilitators and barriers to accessing palliative and end of life care, with themes relating to: (1) Knowledge of hospice and palliative care, (2) societal and structural issues, (3) language and health literacy, (4) migratory experiences, (5) trust in healthcare services and professionals, (6) religion and hope, and (7) cultural values.

conclusionsThis review identified areas for healthcare providers to consider developing more culturally appropriate palliative and end of life care practice, including building trust and improving communication, sharing information, reducing language barriers, addressing stigma, and, if relevant, acknowledging the importance of culture and religion. Further qualitative research from an intersectional perspective, such as geographical location or socio-economic status, rather than race, ethnicity, and culture alone, is needed in more diverse geographical settings and on specific health conditions.

Indexed as

EthnicityHealth Services AccessibilityMinority GroupsPalliative CareTerminal CareAgedAged, 80 and overHumansAccess to careAgeingCultureEnd of lifeEthnicityHealth inequalitiesOlder peoplePalliative care

Identifiers

PMID39289662
PMCPMC11406721

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.