Evidence map›Paper›PMID 39266310›Full record

ArticleBMJ open2024

Acceptability and timing considerations when administering patient-reported outcome measures (PROMs) among people with chronic health conditions who are culturally and linguistically diverse (CALD): a qualitative study protocol.

Jessica Nikolovski, Rachael L Morton, Rebecca Mercieca-Bebber, Matilda Armstrong, Gill Hartas, Brad Rossiter, Margaret Fagan, Melissa Tinsley, Claire Snyder, Olalekan Lee Aiyegbusi and 3 more

Abstract read
In one paragraph

Article in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Electronic patient-reported outcome platforms used in hematological cancers: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Pooled it
  2. Evaluating the Use of Anxiety Patient-Reported Outcome Measures (PROMs) in Dementia Clinical Trials: A Systematic Review.Health expectations : an international journal of public participation in health care and health policy · 2026
    Pooled it
  3. Strategies to promote the completion of patient-reported outcome measures by culturally and linguistically diverse and Indigenous Peoples in clinical care settings: A systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Pooled it
  4. Physiotherapist and nurse perspectives on the acceptability and timing of patient-reported outcome measures in clinical practice: Balancing standardisation and flexibility.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Jessica NikolovskiNHMRC Clinical Trials Centre, Camperdown, New South Wales, Australia jessica.nikolovski@sydney.edu.au.ORCID 0009-0000-0912-9087
Rachael L MortonNHMRC Clinical Trials Centre, Camperdown, New South Wales, Australia.ORCID 0000-0001-7834-0572
Rebecca Mercieca-BebberNHMRC Clinical Trials Centre, Camperdown, New South Wales, Australia.ORCID 0000-0003-3708-9099
Matilda ArmstrongNSW Agency for Clinical Innovation, St Leonards, New South Wales, Australia.
Gill HartasNSW Agency for Clinical Innovation, St Leonards, New South Wales, Australia.
Brad RossiterNSW Agency for Clinical Innovation, St Leonards, New South Wales, Australia.
Margaret FaganNSW Agency for Clinical Innovation, St Leonards, New South Wales, Australia.
Melissa TinsleyNSW Agency for Clinical Innovation, St Leonards, New South Wales, Australia.
Claire SnyderDepartments of Medicine, Oncology, and Health Policy & Management, Johns Hopkins School of Medicine, Baltimore, Maryland, USA.
Olalekan Lee AiyegbusiCentre for Patient-Reported Outcomes Research (CPROR), University of Birmingham Institute of Applied Health Research, Birmingham, UK.ORCID 0000-0001-9122-8251
Rubina Amin-KorimNHMRC Clinical Trials Centre, Camperdown, New South Wales, Australia.
Kim SutherlandClinical Innovation and Research Division, New South Wales Office for Health and Medical Research, St Leonards, New South Wales, Australia.ORCID 0000-0003-1327-090X
Claudia RutherfordSydney Quality of Life Office (SQOLO), The University of Sydney Susan Wakil School of Nursing and Midwifery, Sydney, New South Wales, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionPatient-reported outcome measures (PROMs) are validated and standardised questionnaires that capture patients' own reports of their symptoms, functioning and well-being. PROMs can facilitate communication between patients and clinicians, reduce symptom burden, enhance quality of life and inform health service re-design. We aim to determine the acceptability of PROMs and the preferred timing of PROM completion in New South Wales (NSW) at the point of care, facilitated by the Health Outcomes and Patient Experiences (HOPE) platform. METHODS AND ANALYSIS: Semi-structured interviews with patients (~50-75, sampling across seven language groups and seven clinical cohorts), carers (~10-20) and clinicians (~18) enrolled in HOPE will be conducted via videoconference, telephone or in person. Participants will be asked questions about (1) what makes PROMs acceptable for use in chronic disease management (2) when patients would prefer to complete PROMs and when clinicians would like to use PROMs for clinical decision-making and (3) factors that impede the acceptability of PROMs for culturally and linguistically diverse patients. Interviews will be analysed using a reflexive thematic approach, guided by Normalisation Process Theory. ETHICS AND DISSEMINATION: Ethics approval has been obtained from the Sydney Local Health District Human Research Ethics Committee (SLHD HREC, Study Protocol #X24-0138). Results will be published in appropriate peer-reviewed journals, presented at conferences, disseminated to participants in the form of a plain language summary, and widely disseminated to consumer groups and professional stakeholders.

Indexed as

Patient Reported Outcome MeasuresQualitative ResearchChronic DiseaseCultural DiversityFemaleHumansInterviews as TopicLanguageMaleMiddle AgedNew South WalesQuality of LifeResearch DesignTime FactorsChronic DiseaseHealth SurveysPatient Reported Outcome MeasuresQUALITATIVE RESEARCH

Identifiers

PMID39266310
PMCPMC11404136

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.