Evidence map›Paper›PMID 39264982›Full record

ArticlePloS one2024

Study protocol for the Functional Communication Checklist for people living with primary progressive aphasia.

Jeanne Gallée, Jade Cartwright, Maya L Henry, Aimee Mooney, Brielle C Stark, Anna Volkmer, Connie Nakano, Rob J Fredericksen, Kimiko Domoto-Reilly, Paul K Crane

Abstract read
In one paragraph

Article in PloS one, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Jeanne GalléeDepartment of Medicine, University of Washington, Seattle, WA, United States of America.ORCID 0000-0002-9338-2727
Jade CartwrightSchool of Health Sciences, University of Tasmania, Launceston, Australia.ORCID 0000-0002-6381-6184
Maya L HenryDepartment of Speech, Language, and Hearing Sciences, University of Texas-Austin, Austin, TX, United States of America.
Aimee MooneyDepartment of Neurology, Oregon Health & Science University, Portland, OR, United States of America.
Brielle C StarkDepartment of Speech, Language, and Hearing Sciences, Indiana University, Bloomington, IN, United States of America.
Anna VolkmerDivision of Psychology and Language Sciences, University College London, London, United Kingdom.
Connie NakanoDepartment of Medicine, University of Washington, Seattle, WA, United States of America.
Rob J FredericksenDepartment of Allergy and Infectious Diseases, University of Washington, Seattle, WA, United States of America.
Kimiko Domoto-ReillyDepartment of Neurology, University of Washington, Seattle, WA, United States of America.
Paul K CraneDepartment of Medicine, University of Washington, Seattle, WA, United States of America.

Funding

MVP Data Integration into the ADSP Phenotype Harmonization ConsortiumU24AG074855 · NIA · VANDERBILT UNIVERSITY MEDICAL CENTER · PI CUCCARO, MICHAEL L, HOHMAN, TIMOTHY J · 2021 to 2025
$37.5M
University of Washington Alzheimer's Disease Research CenterP30AG066509 · NIA · UNIVERSITY OF WASHINGTON · PI Thomas J. Grabowski · 2020 to 2026
$29.0M
NIA NIH HHS P30 AG066509NIA NIH HHS U24 AG074855
6 · The paper itself

Abstract

This study protocol describes the development of the first instrument of functional communication for people living with primary progressive aphasia (PPA), with future applications to other progressive conditions, with expert validation, item-level reliability analyses, input from partners in research, and outcomes. Progressive conditions like PPA require monitoring, and as such, re-assessment. Re-assessment poses the high risk of being burdensome, destructive, and of little use to the patient. As such, there is a significant need to establish a validated and reliable measure that (1) poses minimal patient burden and (2) captures communication ability in a strengths-based manner for both clinical and research purposes. A strengths-based approach to assessment is widely recognized as the optimal way to promote patient autonomy, minimize harm, and implement functional treatment protocols and strategies. To date, there are no strengths-based assessment tools that were developed for people living with PPA nor ways to efficiently document functional communication performance. This study protocol outlines our work to address this gap in clinical practice and research.

Indexed as

Aphasia, Primary ProgressiveCommunicationChecklistHumansReproducibility of Results

Identifiers

PMID39264982
PMCPMC11392343

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.