Evidence map›Paper›PMID 39263814›Full record

ArticleJournal of applied gerontology : the official journal of the Southern Gerontological Society2025

Unmet Needs and Factors Impacting Home- and Community-Based Service Use Among Rural Appalachian Caregivers of People With Alzheimer's and Dementia.

David Russell, Christina E Miyawaki, Jennifer M Reckrey, Erin D Bouldin

Abstract read
In one paragraph

Article in Journal of applied gerontology : the official journal of the Southern Gerontological Society, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Article
  4. Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

David RussellAppalachian State University, Boone, NC, USA.ORCID 0000-0001-8433-0821
Christina E MiyawakiUniversity of Houston, Houston, TX, USA.ORCID 0000-0002-1234-1588
Jennifer M ReckreyIcahn School of Medicine at Mount Sinai, New York, NY, USA.ORCID 0000-0001-8904-8200
Erin D BouldinUniversity of Utah, Salt Lake City, UT, USA.ORCID 0000-0001-7550-309X

Funding

Interdisciplinary Network on Rural Population Health and AgingR24AG065159 · NIA · PENNSYLVANIA STATE UNIVERSITY, THE · PI JENSEN, LEIF · 2019 to 2023
$1.9M
NIA NIH HHS R24 AG065159
6 · The paper itself

Abstract

Family caregivers of persons with Alzheimer's disease and related dementias (ADRD) living in rural areas face significant health and healthcare challenges. Limited research, however, has explored factors shaping their use of home- and community-based services (HCBS). This study identifies unmet needs among caregivers of people with ADRD in rural Western North Carolina and highlights contextual factors that facilitate HCBS use. Nineteen qualitative interviews were conducted with 21 family caregivers and 1 person with ADRD between 2021 and 2022. Thematic analyses revealed unmet needs among caregivers for information, service navigation, and caregiving support. HCBS use was shaped by multiple factors including illness needs, cultural beliefs, preferences for home-based care, and place-based resources. These findings suggest that culturally tailored HCBS are needed to support people with ADRD and their caregivers in rural Appalachian communities, especially those which facilitate access to paid caregiving, clearly communicate program eligibility requirements, and emphasize service availability.

Indexed as

Alzheimer DiseaseCaregiversCommunity Health ServicesDementiaHealth Services Needs and DemandHome Care ServicesAgedAged, 80 and overAppalachian RegionFemaleHumansInterviews as TopicMaleMiddle AgedNorth CarolinaQualitative Researchcaregivingdementiahome- and community-based care and servicesqualitative methodsrural

Identifiers

PMID39263814
PMCPMC11896892

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.