Evidence map›Paper›PMID 39260828›Full record

ArticleBMJ global health2024

Supporting caregivers of children living with disability in a humanitarian context: realist-informed evaluation of the '

Natalie Evans, Noorwhiza Ahmadi, Alice Morgan, Sadia Zalmai, Kate M Milner, Mohamed Faiz Atif, Hamish R Graham

Abstract read
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Article in BMJ global health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Natalie EvansMelbourne Children's Global Health, Murdoch Children's Research Institute, Melbourne, Victoria, Australia nat.evans@gmail.com.ORCID http://orcid.org/0000-0002-6452-3009
Noorwhiza AhmadiRelief Humanitarian Development Organization (RHDO), Kabul, Afghanistan.
Alice MorganMelbourne Children's Global Health, Murdoch Children's Research Institute, Melbourne, Victoria, Australia.
Sadia ZalmaiRelief Humanitarian Development Organization (RHDO), Kabul, Afghanistan.
Kate M MilnerMelbourne Children's Global Health, Murdoch Children's Research Institute, Melbourne, Victoria, Australia.
Mohamed Faiz AtifRelief Humanitarian Development Organization (RHDO), Kabul, Afghanistan.
Hamish R GrahamMelbourne Children's Global Health, Murdoch Children's Research Institute, Melbourne, Victoria, Australia.ORCID http://orcid.org/0000-0003-2461-0463

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionTo ensure that humanitarian action is disability-inclusive, evidence is needed to understand how different strategies to support children living with disabilities and their families can work in these settings. Evidence from other contexts suggests support groups can improve caregiver quality of life (QOL). This study reports an evaluation of the '

methodsWe conducted a mixed-methods realist-informed before-and-after study to measure change in caregiver-reported QOL and explore how and for whom the programme worked, and in what contexts. Female caregivers of children with any disability were recruited through clinics in urban Kabul (n=3) and rural Paghman district (n=3). We collected quantitative data on QOL pre/post programme using the Paediatric Quality of Life Inventory Family Impact Module (PedsQL-FIM). Qualitative data were collected through facilitator and participant focus groups postprogramme.

results118 caregivers participated in two cohorts (November 2020, February 2021). Caregivers expressed a significant increase in QOL from baseline to programme completion (t(125)=-10.7, p≤0.0001). Participation in cohort 2 was associated with the greatest PedsQL-FIM change.Qualitative data revealed positive changes postprogramme in five key areas: caregiver mindset, parenting practices, disability-inclusive behaviours, psychological well-being and child functioning. These changes were seen as both outcomes and mechanisms influencing the primary outcome of QOL. Mechanisms that mediated these changes included increased knowledge of disability and the core acceptance and commitment therapy components of mindfulness and acceptance.

conclusionThe

Indexed as

CaregiversChildren with DisabilitiesQuality of LifeAdolescentAdultAfghanistanAltruismChildChild, PreschoolFemaleHumansMaleMiddle AgedProgram EvaluationSelf-Help GroupsChild healthPaediatrics

Identifiers

PMID39260828
PMCPMC11404242

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.