Evidence map›Paper›PMID 39259842›Full record

ArticlePancreas2025

Patient and Family Input to Determine Experiences and Research Interests in Pediatric Pancreatitis: An INSPPIRE-2 Study.

Gretchen A Cress, Karen T Scudiero, Fuchenchu Wang, Vanessa B Patrick, Phoebe M Wood, Ying Yuan, Mark E Lowe, Aliye Uc

Abstract read
In one paragraph

Article in Pancreas, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Trial
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Gretchen A CressFrom the Department of Pediatrics, University of Iowa, Stead Family Children's Hospital, Iowa City, IA.ORCID 0000-0003-3396-1804
Karen T ScudieroFrom the Department of Pediatrics, University of Iowa, Stead Family Children's Hospital, Iowa City, IA.
Fuchenchu WangBiostatistics, University of Texas, MD Anderson Cancer Center, Houston, TX.
Vanessa B PatrickDivision of Gastroenterology/Hepatology, Riley Hospital for Children, Indiana University School of Medicine, Indianapolis, IN.
Phoebe M WoodDepartment of Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PA.
Ying YuanBiostatistics, University of Texas, MD Anderson Cancer Center, Houston, TX.
Mark E LoweDepartment of Pediatrics, Washington University School of Medicine, St Louis, MO.
Aliye UcFrom the Department of Pediatrics, University of Iowa, Stead Family Children's Hospital, Iowa City, IA.

Funding

Consortium for the Study of Chronic Pancreatitis, Diabetes and Pancreatic Cancer: Coordinating and Data Management Center (CSCPDPC-CDMC)U01DK108328 · NIDDK · UNIVERSITY OF TX MD ANDERSON CAN CTR · PI Liang Li, Suyu Liu · 2015 to 2026
$32.8M
University of Iowa Institute for Clinical and Translational ScienceUM1TR004403 · NCATS · UNIVERSITY OF IOWA · PI Marlan R Hansen, Patricia Winokur · 2023 to 2026
$16.1M
Year 9 Administrative Supplement to INSPPIRE 2U01DK108334 · NIDDK · UNIVERSITY OF IOWA · PI MARK E. LOWE, Aliye Uc · 2015 to 2026
$10.5M
A Randomized Trial of a Web-based Non-Pharmacological Pain Intervention for Pediatric Chronic PancreatitisR01DK118752 · NIDDK · UNIVERSITY OF IOWA · PI PALERMO, TONYA M, UC, ALIYE · 2018 to 2022
$3.0M
NCATS NIH HHS UM1 TR004403NIDDK NIH HHS R01 DK118752NIDDK NIH HHS U01 DK108328NIDDK NIH HHS U01 DK108334
6 · The paper itself

Abstract

objectiveThe aim of this study was to determine patient-reported burdensome experiences and research interests in children with acute recurrent pancreatitis or chronic pancreatitis and their families. MATERIALS AND

methodsChildren with pancreatitis and their families completed a web-based survey. Subject prioritized rankings of symptoms or quality of life issues and topics for future research were assessed. Data are presented as family and children scores.

resultsAmong 80 participants, 18 were children with pancreatitis and 62 were family members. Top 5 ranked symptoms or quality of life issues were as follows: 1) pain, 2) fatigue, 3) missing school, 4) upset stomach, and 5) not knowing when an attack will occur. Top 5 ranked future research topics were as follows: 1) how to prevent a pancreatitis attack, 2) how pancreatitis affects other parts of the body, 3) ways to treat or handle pain, 4) what is the cause of pancreatitis, and 5) teach doctors about pancreatitis.

conclusionsThis study highlights the importance of patient and family input in caring for children with pancreatitis. The most bothersome symptoms were pain, fatigue, and upset stomach. Children with pancreatitis and families would like future research to primarily focus on prevention of pancreatitis attacks, pain therapy, and complications of pancreatitis.

Indexed as

FamilyPancreatitisQuality of LifeAdolescentChildFemaleHumansMalePancreatitis, ChronicSurveys and Questionnaires

Identifiers

PMID39259842
PMCPMC11634667

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.