Evidence map›Paper›PMID 39256708›Full record

ArticleBMC palliative care2024

Analyzing innovative policies and practices for palliative care in Portugal: a qualitative study.

Marcelle Miranda da Silva, Audrei Castro Telles, Cristina Lavareda Baixinho, Eunice Sá, Andreia Costa, Maria Adriana Pereira Henriques

Abstract read
In one paragraph

Article in BMC palliative care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Marcelle Miranda da SilvaEscola de Enfermagem Anna Nery (EEAN), Universidade Federal do Rio de Janeiro (UFRJ), Afonso Cavalcanti Street, Rio de Janeiro, 21211-110, RJ, Brazil. marcellemsufrj@gmail.com.
Audrei Castro TellesEscola de Enfermagem Anna Nery (EEAN), Universidade Federal do Rio de Janeiro (UFRJ), Afonso Cavalcanti Street, Rio de Janeiro, 21211-110, RJ, Brazil.
Cristina Lavareda BaixinhoNursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Prof Egas Moniz Avenue, Lisbon, 1600-190, Portugal.
Eunice SáNursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Prof Egas Moniz Avenue, Lisbon, 1600-190, Portugal.
Andreia CostaNursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Prof Egas Moniz Avenue, Lisbon, 1600-190, Portugal.
Maria Adriana Pereira HenriquesNursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Prof Egas Moniz Avenue, Lisbon, 1600-190, Portugal.

Funding

Conselho Nacional de Desenvolvimento Científico e Tecnológico 200606/2022-0Nursing Research, Innovation and Development Centre of Lisbon N/A
6 · The paper itself

Abstract

backgroundCountries with formal policies for palliative care, and advanced and integrated practices in this field, such as Portugal, face challenges in achieving excellence in care, particularly in home-based assistance. Issues include care coordination among providers, confusion regarding the roles of each health care professional in the network, and a lack of monitoring and evaluation of actions. Our objective was to analyze the implementation of palliative care in primary health care in Portugal.

methodsWe conducted a qualitative, descriptive, and exploratory study in Portugal involving health care professionals with experience in palliative care. The data were collected through semistructured interviews and focus groups between March and October 2023. Eighteen health care professionals participated. We used the Alceste software for lexicographic analysis. The research was authorized by an Ethics Committee.

resultsFour classes were identified; classes 1 and 2, comprising 77% of the corpus, addressed the study objectives. Participants highlighted inequitable access, strategic development plans with unattainable short-term goals; and low literacy. They emphasized the importance of legislation, professional training initiatives for generalist palliative care at home, and early referral. Home-based challenges included professionals' lack of exclusive dedication, absence of 24/7 coverage, and unavailability of capable family caregivers. The networks' response to hospital admissions and patient transitions from hospital to home, with access to the specialized team, was also inadequate.

conclusionsHealth care professionals aim to increase patients' time spent at home, reduce emergency department visits, and minimize hospitalizations by leveraging the resources of the national palliative care network. In addition to investments to sustain network implementation and legally guaranteed palliative care rights, the country must focus on measurable indicators for evaluating and monitoring actions, providing better guidance in the short, medium, and long term.

Indexed as

Focus GroupsPalliative CareQualitative ResearchAdultFemaleHealth PolicyHumansMaleMiddle AgedPortugalDelivery of Health CareHealth PolicyHospice CarePalliative CarePortugalPrimary Health Care

Identifiers

PMID39256708
PMCPMC11389312

What OpenQuestion holds

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.