Evidence map›Paper›PMID 39250177›Full record

ArticleCurrent medical research and opinion2024

User experience with HIV molecular epidemiology in research, surveillance, and cluster detection and response: a needs assessment.

Anne L R Schuster, Ashley Folta, Juli Bollinger, Gail Geller, Sanjay R Mehta, Susan J Little, Travis Sanchez, Jeremy Sugarman, John F P Bridges

Abstract read
In one paragraph

Article in Current medical research and opinion, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
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  4. Article
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Anne L R SchusterDepartment of Biomedical Informatics, The Ohio State University College of Medicine, Columbus, OH, USA.ORCID 0000-0003-4391-1712
Ashley FoltaThe Ohio State University College of Public Health, Columbus, OH, USA.
Juli BollingerBerman Institute of Bioethics, Johns Hopkins University, Baltimore, MD, USA.
Gail GellerBerman Institute of Bioethics, Johns Hopkins University, Baltimore, MD, USA.
Sanjay R MehtaDivision of Infectious Disease, University of California San Diego, San Diego, CA, USA.ORCID 0000-0002-2028-8158
Susan J LittleDivision of Infectious Disease, University of California San Diego, San Diego, CA, USA.
Travis SanchezDepartment of Epidemiology, Rollins School of Public Health, Emory University, Atlanta, GA, USA.ORCID 0000-0003-1133-4762
Jeremy SugarmanBerman Institute of Bioethics, Johns Hopkins University, Baltimore, MD, USA.ORCID 0000-0001-7022-8332
John F P BridgesDepartment of Biomedical Informatics, The Ohio State University College of Medicine, Columbus, OH, USA.ORCID 0000-0002-3082-5535

Funding

VirologyP30AI036214 · NIAID · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI SUSAN JANET LITTLE · 1994 to 2026
$78.4M
Risks, Benefits, and Stakeholder Perspectives of Molecular Epidemiology for HIV Prevention (HIV-ME)R01MH124590 · NIMH · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI LITTLE, SUSAN JANET, SUGARMAN, JEREMY · 2020 to 2024
$3.9M
NIAID NIH HHS P30 AI036214NIMH NIH HHS R01 MH124590
6 · The paper itself

Abstract

objectiveHIV molecular epidemiology (HIV ME) is a tool that aims to improve HIV research, surveillance, and cluster detection and response. HIV ME is a core pillar of the U.S. initiative to End the HIV Epidemic but faces some challenges and criticisms from stakeholders. We sought to assess user experience to identify the current needs for HIV ME.

methodsUsers of HIV ME, including researchers and public health practitioners, were engaged via a structured survey. Needs were assessed via open-ended questions about HIV ME. Data were analyzed using reflexive thematic analysis; the concordance of results was assessed semi-quantitatively.

resultsOf 90 possible HIV-ME end-users, 57 completed the survey (response rate = 63%), which included users engaged in research (

conclusionThe imperatives identified by users underscore the necessity of HIV ME, while the challenges highlight the hurdles to be overcome, including ethical concerns which emerged as a shared emphasis across user groups. The strategies outlined offer a roadmap for overcoming these challenges. These insights, drawn from user experience, present a valuable opportunity to inform the development of guidelines for the ethical application of HIV ME in research, surveillance, and cluster detection and response.

Indexed as

HIV InfectionsMolecular EpidemiologyFemaleHumansMaleNeeds AssessmentPopulation SurveillanceSurveys and QuestionnairesHIV surveillancemolecular epidemiologyneeds assessmentsurveillanceuser experience

Identifiers

PMID39250177
PMCPMC12189590

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.