ArticleJCO oncology practice2025
Patient, Parent, and Oncologist Perspectives and Recommendations on the Right Way to Talk About Prognosis in Advanced Childhood Cancer.
Article in JCO oncology practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- Codesigning Communication Interventions With Adolescents, Parents, and Clinicians in Pediatric Oncology: A Feasibility Study.Pediatric blood & cancer · 2026Article
- Shifting sands: How parents engage with the idea of their child's death.Palliative & supportive care · 2026Article
- Planting seeds for seasons ahead: Communication strategies for prognostic disclosure in pediatric neuro-oncology.Neuro-oncology practice · 2026Article
- Managing Conflicting Prognostic Communication Preferences in Pediatric Oncology.JAMA network open · 2026Article
- Hope and Uncertainty in Prognostic Discussions.Pediatrics · 2026Article
- Article
- Differences in Patient and Parent Preferences for Prognostic Communication Across Disease Milestones in Advanced Childhood Cancer.Pediatric blood & cancer · 2025Article
- Communication About Prognosis Across Advancing Childhood Cancer: Preferences and Recommendations from Bereaved Parents.Journal of palliative medicine · 2025Article
- Understanding theChildren (Basel, Switzerland) · 2025Article
- "I had no idea what to expect": adolescent and young adults with cancer identify opportunities for patient-centered anticipatory guidance through narrative writing.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- "We Were Still Left in the Back Field, Not Knowing": Pediatric Cancer Patients and Parents Describe Obstacles to Prognostic Communication.Cancer medicine · 2025Article
- Preferences for Communication About Prognosis Among Children With Cancer, Parents, and Oncologists.JAMA network open · 2025Article
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Authors and funding
9 authors.
Funding
Abstract
purposeClear prognostic communication is associated with improvements in quality of life and suffering for children with advanced illness. Yet recent evidence demonstrates that pediatric oncologists often avoid, defer, or soften prognostic disclosure. We aimed to describe pediatric cancer shareholder perspectives on quality prognostic communication to inform design of an intervention to improve prognostic disclosure in advanced childhood cancer.
methodsSemi-structured interviews were conducted with a purposeful sample of pediatric patients with cancer (n = 20), parents (n = 20), and oncologists (n = 20) representing six institutions across five states. Rapid analysis was performed using the National Cancer Institute core communication functions to organize domains of inquiry.
resultsThree main themes were endorsed by participants regarding the ideal timing of prognostic disclosure: early, ongoing, individualized. Although each group emphasized the need for an individualized approach, oncologists rarely elicited patient/parent preferences for prognostic communication and more commonly inferred what a patient/family wanted to hear. Participants described five key pillars for how to facilitate quality prognostic disclosure: conversation leadership, overall attendance, patient inclusion, location, and atmosphere. They also identified four themes around ideal prognostic content: range of information, use of numbers, population-level versus patient-specific information, and tone/delivery. Discordant recommendations between patients/parents and oncologists emerged for how much and what information to share.
conclusionPediatric cancer shareholders advocated for diverse, and sometimes conflicting, approaches for prognostic disclosure. Although nearly all participants endorsed the importance of individualized prognostic disclosure, specific strategies to encourage or facilitate person-centered prognostic conversation are lacking. Future research will focus on collaboration with pediatric patients, parents, and oncologists to codesign a clinical intervention to improve prognostic communication for children with advanced cancer and their families.
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