Evidence map›Paper›PMID 39240640›Full record

ArticleJournal of Alzheimer's disease : JAD2024

Healthcare Professionals' Perspectives on Post-Diagnostic Care for People with Vascular Cognitive Impairment: When Help Is Needed in a "No-Man's Land".

Sara A J van de Schraaf, Hanneke F M Rhodius-Meester, Lindsey M Rijnsent, Meyrina D Natawidjaja, Esther van den Berg, Frank J Wolters, J M Anne Visser-Meily, Geert Jan Biessels, Marjolein de Vugt, Majon Muller and 2 more

Abstract read
In one paragraph

Article in Journal of Alzheimer's disease : JAD, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Sara A J van de SchraafMedicine for Older People, Amsterdam UMC, Location VUmc, Amsterdam, The Netherlands.
Hanneke F M Rhodius-MeesterInternal Medicine, Geriatric Medicine Section, Amsterdam UMC, Location VUmc, Amsterdam, The Netherlands.
Lindsey M RijnsentMedicine for Older People, Amsterdam UMC, Location VUmc, Amsterdam, The Netherlands.
Meyrina D NatawidjajaMedicine for Older People, Amsterdam UMC, Location VUmc, Amsterdam, The Netherlands.
Esther van den BergDepartment of Neurology and Alzheimer Center, Erasmus MC University Medical Center, Rotterdam, The Netherlands.
Frank J WoltersDepartment of Radiology & Nuclear Medicine, Erasmus MC University Medical Center, Rotterdam, The Netherlands.
J M Anne Visser-MeilyDepartment of Rehabilitation, Physical Therapy Science & Sports, University Medical Centre Utrecht, Utrecht, The Netherlands.
Geert Jan BiesselsUMC Utrecht Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands.
Marjolein de VugtSchool for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University, Maastricht, The Netherlands.
Majon MullerInternal Medicine, Geriatric Medicine Section, Amsterdam UMC, Location VUmc, Amsterdam, The Netherlands.
Cees M P M HertoghMedicine for Older People, Amsterdam UMC, Location VUmc, Amsterdam, The Netherlands.
Eefje M SizooMedicine for Older People, Amsterdam UMC, Location VUmc, Amsterdam, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Post-diagnostic care for people with vascular cognitive impairment (VCI) typically involves multiple professions and disjointed care pathways not specifically designed to aid VCI needs. Objective: Exploring perspectives of healthcare professionals on post-diagnostic care for people with VCI. Methods: We conducted a qualitative focus group study. We used purposive sampling to include healthcare professionals in different compositions of primary and secondary care professionals per focus group. Thematic saturation was reached after seven focus groups. Transcripts were iteratively coded and analyzed using inductive thematic analysis. Results: Forty participants were included in seven focus groups (4-8 participants). Results showed knowledge and awareness of VCI as prerequisites for adequate post-diagnostic care, and for pre-diagnostic detection of people with VCI (theme 1). In light of perceived lack of differentiation between cognitive disorders, participants shared specific advice regarding post-diagnostic care for people with VCI and informal caregivers (theme 2). Participants thought current care for VCI was fragmented and recommended further integration of care and collaboration across settings (theme 3). Conclusions: People with VCI and their caregivers risk getting stuck in a "no man's land" between post-diagnostic care pathways; challenges lie in acknowledgement of VCI and associated symptoms, and alignment between healthcare professionals. Education about the symptoms and consequences of VCI, to healthcare professionals, people with VCI and caregivers, may increase awareness of VCI and thereby better target care. Specific attention for symptoms common in VCI could further tailor care and reduce caregiver burden. Integration could be enhanced by combining expertise of dementia and stroke/rehabilitation pathways.

Indexed as

CaregiversCognitive DysfunctionFocus GroupsHealth PersonnelAdultAttitude of Health PersonnelDementia, VascularFemaleHealth Knowledge, Attitudes, PracticeHumansMaleMiddle AgedQualitative ResearchAftercareAlzheimer’s diseasecerebrovascular diseasespatient care managementpost-stroke cognitive impairmentrehabilitationvascular cognitive impairmentvascular dementia

Identifiers

PMID39240640
PMCPMC11492012

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.