Evidence map›Paper›PMID 39235710›Full record

ArticleThe patient2024

Appropriateness of the EQ-HWB for Use in Residential Aged Care: A Proxy Perspective.

Lidia Engel, Cate Bailey, Ekaterina Bogatyreva, Frances Batchelor, Nancy Devlin, Briony Dow, Andrew S Gilbert, Brendan Mulhern, Rosalie Viney, Tessa Peasgood

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in The patient, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

  1. Informal carers' perception on perspective taking when reporting as proxies about someone else's health.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  2. Article
  3. Article
  4. Qualitative testing of the EQ-HWB-9 with a 'blank' EQ-HWB VAS and EQ-5D-5L with skin bolt-ons in a rare genetic skin disease population.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  5. Article
  6. Article
  7. Review
  8. Exploring subjective constructions of quality of life in patients, carers and the healthy general public: a Q-methodological study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  9. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Lidia EngelMonash University Health Economics Group, School of Public Health and Preventive Medicine, Monash University, 553 St Kilda Road, Melbourne, VIC, 3004, Australia. Lidia.engel@monash.edu.ORCID 0000-0002-7959-3149
Cate BaileyMelbourne Health Economics, University of Melbourne, Parkville, VIC, Australia.
Ekaterina BogatyrevaSchool of Health and Social Development, Deakin University, Burwood, VIC, Australia.
Frances BatchelorNational Ageing Research Institute, Parkville, VIC, Australia.
Nancy DevlinMelbourne Health Economics, University of Melbourne, Parkville, VIC, Australia.
Briony DowNational Ageing Research Institute, Parkville, VIC, Australia.
Andrew S GilbertNational Ageing Research Institute, Parkville, VIC, Australia.
Brendan MulhernThe Centre for Health Economics Research and Evaluation, University of Technology Sydney, Sydney, NSW, Australia.
Rosalie VineyThe Centre for Health Economics Research and Evaluation, University of Technology Sydney, Sydney, NSW, Australia.
Tessa PeasgoodMelbourne Health Economics, University of Melbourne, Parkville, VIC, Australia.

Funding

EuroQol Research Foundation 150-RA
6 · The paper itself

Abstract

BACKGROUND AND

objectiveThe EQ Health and Wellbeing (EQ-HWB) is a new generic quality-of-life measure for use in evaluating interventions in health, public health and social care. This study aimed to explore proxies' views regarding the appropriateness of the EQ-HWB for measuring residents' quality of life living in residential aged care facilities.

methodsQualitative think-aloud and semi-structured interviews were conducted with family members and aged care staff across three facilities in Melbourne, Australia. Proxies completed the 25-item EQ-HWB proxy version 2 (i.e. proxy-person perspective) whilst talking through the reasons for choosing their response. All interviews were audio-recorded and transcribed verbatim. A thematic analysis was used for data analysis.

resultsThe sample included 29 proxies; nine family members and 20 aged care staff. The first theme summarised proxies' ability to proxy report residents' health and well-being using the EQ-HWB, which highlighted challenges with adherence to the proxy perspective, proxies' limited knowledge about residents, disagreement with residents' self-evaluation and use of heuristics. The second theme reflected feedback on the suitability of the EQ-HWB for use in residential aged care. Although proxies perceived that the EQ-HWB covered important domains, there were concerns about ambiguity, inappropriate examples, double-barrelled items and perceived repetition. Suggestions were made to improve the response options, comprehensiveness, recall period, layout and instructions of the questionnaire.

conclusionsWhile the EQ-HWB captures domains relevant to residential aged care, modifications to item wording and examples are necessary to improve its appropriateness. Use of the proxy-person perspective revealed some challenges that require further consideration.

Indexed as

Homes for the AgedProxyQualitative ResearchQuality of LifeAdultAgedAged, 80 and overAustraliaFamilyFemaleHumansInterviews as TopicMaleMiddle AgedSurveys and Questionnaires

Identifiers

PMID39235710
PMCPMC11461598

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.