Evidence map›Paper›PMID 39224086›Full record

ArticlePediatrics2024

A Coproduced Family Reporting Intervention to Improve Safety Surveillance and Reduce Disparities.

Alisa Khan, Jennifer Baird, Sangeeta Mauskar, Helen W Haskell, Alexandra N Habibi, Tiffany Ngo, Alexandra Aldarondo, Jay G Berry, Katherine L Copp, Jessica P Liu and 19 more

Abstract read
In one paragraph

Article in Pediatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

29 authors.

Alisa KhanDivision of General Pediatrics, Departments of Pediatrics and.
Jennifer BairdInstitute for Nursing and Interprofessional Research, Children's Hospital Los Angeles, Los Angeles, California.
Sangeeta MauskarDivision of General Pediatrics, Departments of Pediatrics and.
Helen W HaskellMothers Against Medical Error, Columbia, South Carolina.
Alexandra N HabibiDivision of General Pediatrics, Departments of Pediatrics and.
Tiffany NgoDivision of General Pediatrics, Departments of Pediatrics and.
Alexandra AldarondoDivision of General Pediatrics, Departments of Pediatrics and.
Jay G BerryDivision of General Pediatrics, Departments of Pediatrics and.
Katherine L CoppDivision of General Pediatrics, Departments of Pediatrics and.
Jessica P LiuInstitutional Centers for Clinical and Translational Research, Biostatistics, and Research Design Center (ICCTR BARD).
Brynn ElderDivision of General Pediatrics, Departments of Pediatrics and.
Kathryn P GrayDivision of General Pediatrics, Departments of Pediatrics and.
Karen HennessyNursing.
Kate E HumphreyDivision of General Pediatrics, Departments of Pediatrics and.
Donna LuffAnesthesia, Harvard Medical School, Boston, Massachusetts.
Nandini MallickDivision of General Pediatrics, Departments of Pediatrics and.
Susan MathersonNursing.
Amanda G McGeacheyMaine Children's Cancer Program at MaineHealth, the Barbara Bush Children's Hospital, Scarborough, Maine.
Patrice MelvinOffice of Health Equity and Inclusion, Boston Children's Hospital, Boston, Massachusetts.
Amy L PinkhamNursing.
Bianca Quiñones-PérezDivision of General Pediatrics, Departments of Pediatrics and.
Jayne RogersNursing.
Sara J SingerDepartment of Medicine, Stanford University School of Medicine, Stanford, California.
Patricia A StoeckDivision of General Pediatrics, Departments of Pediatrics and.
Sara L ToomeyDivision of General Pediatrics, Departments of Pediatrics and.
K ViswanathDepartment of Social and Behavioral Sciences, Harvard T. H. Chan School of Public Health, Boston, Massachusetts.
Jayme L WilderDivision of General Pediatrics, Departments of Pediatrics and.
Mark A SchusterKaiser Permanente Bernard J. Tyson School of Medicine, Pasadena, California.
Christopher P LandriganDivision of General Pediatrics, Departments of Pediatrics and.

Funding

Cardiovascular Disease Epidemiology &Prevention TrngT32HL007779 · NHLBI · UNIVERSITY OF MINNESOTA TWIN CITIES · PI PAMELA L. Lutsey, JAMES S PANKOW · 1994 to 2026
$9.3M
A Multicenter Randomized Controlled Trial of a Patient Safety Reporting Intervention for Families to Improve Medical Error Detection and Reduce InequitiesR01HS028930 · AHRQ · BOSTON CHILDREN'S HOSPITAL · PI KHAN, ALISA · 2022 to 2025
$1.4M
Family Activation and Communication about Errors and Safety (FACES)K08HS025781 · AHRQ · BOSTON CHILDREN'S HOSPITAL · PI KHAN, ALISA · 2018 to 2019
$308k
AHRQ HHS K08 HS025781AHRQ HHS R01 HS028930NHLBI NIH HHS T32 HL007779
6 · The paper itself

Abstract

objectivesExamine family safety-reporting after implementing a parent-nurse-physician-leader coproduced, health literacy-informed, family safety-reporting intervention for hospitalized families of children with medical complexity.

methodsWe implemented an English and Spanish mobile family-safety-reporting tool, staff and family education, and process for sharing comments with unit leaders on a dedicated inpatient complex care service at a pediatric hospital. Families shared safety concerns via predischarge surveys (baseline and intervention) and mobile tool (intervention). Three physicians with patient safety expertise classified events. We compared safety-reporting baseline (via survey) versus intervention (via survey and/or mobile tool) with generalized estimating equations and sub-analyzed data by COVID-19-era and educational attainment. We also compared mobile tool-detected event rates with hospital voluntary incident reporting.

results232 baseline and 208 intervention parents participated (78.2% consented); 29.5% of baseline families versus 38.2% of intervention families reported safety concerns (P = .09). Adjusted odds ratio (95% CI) of families reporting safety concerns intervention versus baseline was 1.6 (1.0-2.6) overall, 2.6 (1.3-5.4) for those with < college education, and 3.1 (1.3-7.3) in the COVID-19-era subgroup. Safety concerns reported via mobile tool (34.6% of enrolled parents) included 42 medical errors, 43 nonsafety-related quality issues, 11 hazards, and 4 other. 15% of mobile tool concerns were also detected with voluntary incident reporting.

conclusionsFamily safety-reporting was unchanged overall after implementing a mobile reporting tool, though reporting increased among families with lower educational attainment and during the COVID-19 pandemic. The tool identified many events not otherwise captured by staff-only voluntary incident reporting. Hospitals should proactively engage families in reporting to improve safety, quality, and equity.

Indexed as

COVID-19Patient SafetyAdultChildChild, PreschoolFamilyFemaleHealth LiteracyHospitals, PediatricHumansInfantMaleParents

Identifiers

PMID39224086
PMCPMC12184738

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.