Evidence map›Paper›PMID 39220185›Full record

ArticleFrontiers in psychiatry2024

A framework for remotely enabled co-design with young people: its development and application with neurodiverse children and their caregivers.

Anna Charlotte Morris, Stephen Douch, Teodora Popnikolova, Chris McGinley, Faith Matcham, Edmund Sonuga-Barke, Johnny Downs

Abstract read
In one paragraph

Article in Frontiers in psychiatry, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Anna Charlotte MorrisCAMHS Digital Lab, Department of Child and Adolescent Psychiatry, Institute of Psychiatry Psychology and Neuroscience, King's College London and South London and Maudsley National Health Service (NHS) Foundation Trust, London, United Kingdom.
Stephen DouchCAMHS Digital Lab, Department of Child and Adolescent Psychiatry, Institute of Psychiatry Psychology and Neuroscience, King's College London and South London and Maudsley National Health Service (NHS) Foundation Trust, London, United Kingdom.
Teodora PopnikolovaCAMHS Digital Lab, Department of Child and Adolescent Psychiatry, Institute of Psychiatry Psychology and Neuroscience, King's College London and South London and Maudsley National Health Service (NHS) Foundation Trust, London, United Kingdom.
Chris McGinleyAge and Diversity, Helen Hamlyn Centre for Design, Royal College of Arts, London, United Kingdom.
Faith MatchamSchool of Psychology, University of Sussex, Brighton and Hove, United Kingdom.
Edmund Sonuga-BarkeDepartment of Child and Adolescent Psychiatry, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, United Kingdom.
Johnny DownsCAMHS Digital Lab, Department of Child and Adolescent Psychiatry, Institute of Psychiatry Psychology and Neuroscience, King's College London and South London and Maudsley National Health Service (NHS) Foundation Trust, London, United Kingdom.

Funding

Medical Research Council MR/W002493/1Medical Research Council MR/Y030788/1
6 · The paper itself

Abstract

Introduction: This paper describes an innovative Framework for Remotely Enabled Co-Design with Young people (FREDY), which details an adaptable four-stage process for generating design concepts with children and other key stakeholders in a naturalistic and inclusive way. Methods: Recommendations from existing patient engagement and design methodologies were combined to provide research teams with procedures to capture and analyse end-user requirements rapidly. Resulting insights were applied through iterative design cycles to achieve accelerated and user-driven innovation. Results: Applying this framework with neurodiverse children within the context of healthcare, shows how creative design methods can give rise to new opportunities for co-creating across diverse geographies, abilities, and backgrounds as well as strengthen co-designer approval of the co-design process and resulting product. Discussion: We summarise key learnings and principles for fostering trust and sustaining participation with remote activities, and facilitating stakeholder design input through continuous collaboration, as well as highlight the potential benefits and challenges of utilising FREDY with neurotypical populations.

Indexed as

ADHDinclusive designneurodevelopmental conditionsqualitative methodsremote co-designyoung people

Identifiers

PMID39220185
PMCPMC11362057

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.