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ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2024

A short scale to measure health-related quality of life after traumatic brain injury in children and adolescents (QOLIBRI-OS-KID/ADO): psychometric properties and German reference values.

Marina Zeldovich, Leonie Krol, Inga K Koerte, Katrin Cunitz, Matthias Kieslich, Marlene Henrich, Knut Brockmann, Anna Buchheim, Michael Lendt, Christian Auer and 10 more

Erratum issuedAbstract read
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Assessing Pediatric Traumatic Brain Injury and Health-Related Quality of Life in Three Eastern European Countries.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners
    Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

20 authors.

Marina ZeldovichInstitute of Psychology, Faculty of Psychology and Sport Science, University of Innsbruck, Innsbruck, Austria. marina.zeldovich@uibk.ac.at.ORCID https://orcid.org/0000-0003-0172-9904
Leonie KrolDepartment of Psychology, Clinical Psychology and Psychotherapy, Philipps University of Marburg, Marburg, Germany.ORCID https://orcid.org/0009-0000-8612-4474
Inga K KoertecBRAIN / Department of Child and Adolescent Psychiatry, Psychosomatics, and Psychotherapy, LMU University Hospital, Ludwig-Maximilian University, Munich, Germany.ORCID https://orcid.org/0000-0003-1281-9286
Katrin CunitzInstitute of Psychology, Faculty of Psychology and Sport Science, University of Innsbruck, Innsbruck, Austria.ORCID https://orcid.org/0000-0001-5530-8190
Matthias KieslichDepartment of Paediatric Neurology, Hospital of Goethe University, Frankfurt, Germany.ORCID https://orcid.org/0000-0001-7525-795X
Marlene HenrichDepartment of Paediatric Neurology, Hospital of Goethe University, Frankfurt, Germany.ORCID https://orcid.org/0000-0003-1045-3938
Knut BrockmannInterdisciplinary Pediatric Center for Children with Developmental Disabilities and Severe Chronic Disorders, Department of Pediatrics and Adolescent Medicine, University Medical Center, Goettingen, Germany.ORCID https://orcid.org/0000-0001-6823-9091
Anna BuchheimInstitute of Psychology, Faculty of Psychology and Sport Science, University of Innsbruck, Innsbruck, Austria.ORCID https://orcid.org/0000-0002-1339-5246
Michael LendtNeuropediatrics, St. Mauritius Therapeutic Clinic, Meerbusch, Germany.ORCID https://orcid.org/0000-0001-8599-8145
Christian AuerDepartment of Neurosurgery, Kepler University Hospital GmbH, Johannes Kepler University Linz, Linz, Austria.ORCID https://orcid.org/0000-0001-5751-3526
Axel NeuDepartment of Neurology and Neuropediatry, VAMED Klinik Geesthacht GmbH, Geesthacht, Germany.
Joenna DriemeyerDepartment of Pediatrics, University of Hamburg-Eppendorf, Hamburg, Germany.
Ulrike WartemannDepartment of Neuropediatrics, VAMED Klinik Hohenstücken GmbH, Brandenburg an der Havel, Germany.
Claudius ThoméDepartment of Neurosurgery, Medical University lnnsbruck, Innsbruck, Austria.
Daniel PinggeraDepartment of Neurosurgery, Medical University lnnsbruck, Innsbruck, Austria.ORCID https://orcid.org/0000-0002-9354-4669
Steffen BerweckSpecialist Center for Paediatric Neurology, Neurorehabilitation and Epileptology, Schoen Klinik, Vogtareuth, Germany.
Michaela V BonfertDepartment of Pediatric Neurology and Developmental Medicine and LMU Center for Development and Children with Medical Complexity, Dr. Von Hauner Children's Hospital, LMU University Hospital, Munich, Germany.
Joachim SussDepartment of Pediatric Surgery, Wilhelmstift Catholic Children's Hospital, Hamburg, Germany.
Holger MuehlanDepartment of Health and Prevention, University of Greifswald, Greifswald, Germany.ORCID https://orcid.org/0000-0001-8048-5682
Nicole von SteinbuechelInstitute of Psychology, Faculty of Psychology and Sport Science, University of Innsbruck, Innsbruck, Austria.ORCID https://orcid.org/0000-0003-4143-4713

Funding

Deutsche Gesetzliche Unfallversicherung FR282
6 · The paper itself

Abstract

purposeThe impact of pediatric traumatic brain injury (pTBI) on health-related quality of life (HRQoL) in children and adolescents remains understudied. Short scales have some advantages in terms of economy and administration over longer scales, especially in younger children. The aim of the present study is to psychometrically evaluate the six-item German version of the QOLIBRI-OS-KID/ADO scale for children and adolescents. In addition, reference values from a general German pediatric population are obtained to assist clinicians and researchers in the interpretation of HRQoL after pTBI.

methodsA total of 297 individuals after TBI and 1997 from a general population sample completed the questionnaire. Reliability, validity, and comparability of the assessed construct were examined.

resultsThe questionnaire showed satisfactory reliability (α = 0.75 and ω = 0.81 and α = 0.85 and ω = 0.86 for the TBI and general population samples, respectively). The QOLIBRI-OS-KID/ADO was highly correlated with its long version (R

conclusionIn combination with the cut-offs, the QOLIBRI-OS-KID/ADO provides a cost-effective screening tool, complemented by interpretation guidelines, which may help to draw clinical conclusions and indications such as further administration of a longer version of the instrument to gain more detailed insight into impaired HRQoL domains or omission of further steps in the absence of an indication.

Indexed as

Brain Injuries, TraumaticPsychometricsQuality of LifeAdolescentChildFemaleGermanyHumansMaleReference ValuesReproducibility of ResultsSurveys and QuestionnairesHealth-related quality of life (HRQoL)Patient-reported outcome measure (PROM)Pediatric traumatic brain injury (pTBI)Reference values

Identifiers

PMID39215856
PMCPMC11541294

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.