Evidence map›Paper›PMID 39210433›Full record

ArticleBMC medical education2024

Towards equity & inclusion: a critical examination of genetic Counselling Education on Intersex Healthcare.

Adrienne B Atayan, Katherine Huerne, Nicole Palmour, Yann Joly

Abstract read
In one paragraph

Article in BMC medical education, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Adrienne B AtayanDivision of Medical Genetics, McGill University Health Centre, 1001 Decarie Blvd, Montreal, QC, H4A 3J1, Canada.
Katherine HuerneCentre of Genomics and Policy, McGill University, 740 avenue Dr. Penfield, suite 5200, Montreal, QC, H3A 0G1, Canada.
Nicole PalmourCentre of Genomics and Policy, McGill University, 740 avenue Dr. Penfield, suite 5200, Montreal, QC, H3A 0G1, Canada. nicole.palmour@mcgill.ca.
Yann JolyCentre of Genomics and Policy, McGill University, 740 avenue Dr. Penfield, suite 5200, Montreal, QC, H3A 0G1, Canada.

Funding

the Social Sciences and Humanities Research Council 435-2018-0626
6 · The paper itself

Abstract

backgroundIntersex describes a diversity of individuals with variations in sex characteristics (VSC), reflecting underlying differences in reproductive anatomy, hormones, and/or genes and chromosomes. With a shift towards socially-conscious clinical practices, genetic counsellors (GCs) are increasingly needing to provide comprehensive care to individuals with VSC and their families. However, the current quality of training provided to genetic counsellors on intersex health is unclear.

methodsQualitative interviews were conducted between Jan-Feb 2021 with 20 current and graduated students of Canadian GC training programs to assess the quality of GC education on intersex health topics. An agency-based model of VSC health as proposed by Crocetti et al. was used to guide the inductive thematic data analysis.

resultsResults revealed three key themes: limited discussions on psychosocial considerations when caring for intersex individuals, enthusiasm for integrating more intersex training into the curriculum, and personal initiative in ensuring equity and justice in the care of individuals with VSC.

conclusionsThese findings demonstrate existing knowledge gaps in the GC curriculum, with a need to increase the profession's overall awareness on intersex issues. GC training programs have an opportunity to meet the desires of students while promoting person-centered and validating healthcare for the intersex community.

Indexed as

CurriculumGenetic CounselingAdultCanadaDisorders of Sex DevelopmentFemaleHumansInterviews as TopicMaleQualitative ResearchEducation and trainingGenetic counsellingGenetic counsellorsIntersexVariations of sex characteristics

Identifiers

PMID39210433
PMCPMC11360692

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.