Evidence map›Paper›PMID 39201902›Full record

ArticleChildren (Basel, Switzerland)2024

The Practical Application of the Individual Care Plan for Pediatric Palliative Care: A Mixed-Method Study.

Chantal Y Joren, Judith L Aris-Meijer, Leontien C M Kremer, Suzanne C Hofman, Hester Rippen-Wagner, Ria Slingerland-Blom, Chantal van der Velden, Meggi A Schuiling-Otten, Project Team Icp, A A Eduard Verhagen and 1 more

Abstract read
In one paragraph

Article in Children (Basel, Switzerland), 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Chantal Y JorenUniversity of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, 9713 GZ Groningen, The Netherlands.ORCID 0000-0003-3928-1973
Judith L Aris-MeijerUniversity of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, 9713 GZ Groningen, The Netherlands.ORCID 0000-0002-9424-8159
Leontien C M KremerPrincess Maxima Centre for Pediatric Oncology, Heidelberglaaan 25, 3584 CS Utrecht, The Netherlands.
Suzanne C HofmanUniversity Medical Center Utrecht, Wilhelmina Children's Hospital, Lundlaan 6, 3584 EA Utrecht, The Netherlands.
Hester Rippen-WagnerDutch Foundation Child and Hospital, 3527 GV Utrecht, The Netherlands.ORCID 0009-0002-5000-5646
Ria Slingerland-BlomDutch Centre of Expertise in Children's Palliative Care, Mercatorlaan 1200, 3528 BL Utrecht, The Netherlands.
Chantal van der VeldenDutch Centre of Expertise in Children's Palliative Care, Mercatorlaan 1200, 3528 BL Utrecht, The Netherlands.
Meggi A Schuiling-OttenDutch Centre of Expertise in Children's Palliative Care, Mercatorlaan 1200, 3528 BL Utrecht, The Netherlands.
Project Team IcpUniversity Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, 9713 GZ Groningen, The Netherlands.
A A Eduard VerhagenUniversity of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, 9713 GZ Groningen, The Netherlands.ORCID 0000-0001-9555-6922
Marijke C KarsCenter of Expertise in Palliative Care Utrecht, Julius Center of Health and Primary Care, UMC Utrecht, Universiteitsweg 100, 3584 CG Utrecht, The Netherlands.

Funding

ZonMw 844001709
6 · The paper itself

Abstract

BACKGROUND/

objectiveThe Individual Care Plan (ICP) for pediatric palliative care was developed to provide person-centered care for the individual child and family. Currently, a lack of clarity remains regarding the use and function of the ICP in daily practice. To further implement the ICP, it is important to identify how parents and healthcare professionals use the ICP and which obstacles or benefits are experienced.

methodsThis mixed-method study used qualitative interviews and quantitative questionnaires in (bereaved) parents and healthcare professionals with experience with the ICP.

resultsParents and healthcare professionals used the ICP to establish a joint plan for care and treatment of the child to coordinate care and to achieve child- and family-centered care. This includes both obstacles that complicate achieving care goals and benefits that make it easier. Furthermore, responsibilities for the ICP remained unclear, and there was no set point in the illness trajectory for drawing up the ICP.

conclusionsParents and healthcare professionals use the ICP as intended. However, uncertainties regarding timing, roles and responsibilities prevent optimal use of the ICP. Agreements on timing and responsibilities are needed for further ICP implementation in daily pediatric palliative care practice.

Indexed as

individual care planpediatric advanced care planningpediatric palliative careshared decision-making

Identifiers

PMID39201902
PMCPMC11352542

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.